Kazis Lewis E, Marino Molly, Ni Pengsheng, Soley Bori Marina, Amaya Flor, Dore Emily, Ryan Colleen M, Schneider Jeff C, Shie Vivian, Acton Amy, Jette Alan M
Department of Health Law, Policy, and Management, Center for the Assessment of Pharmaceutical Practices (CAPP), Boston University School of Public Health, Boston, MA, USA.
Health & Disability Research Institute, Boston University School of Public Health, 715 Albany Street, T5W, Boston, MA, 02118, USA.
Qual Life Res. 2017 Oct;26(10):2851-2866. doi: 10.1007/s11136-017-1588-3. Epub 2017 May 10.
Measuring the impact burn injuries have on social participation is integral to understanding and improving survivors' quality of life, yet there are no existing instruments that comprehensively measure the social participation of burn survivors. This project aimed to develop the Life Impact Burn Recovery Evaluation Profile (LIBRE), a patient-reported multidimensional assessment for understanding the social participation after burn injuries.
192 questions representing multiple social participation areas were administered to a convenience sample of 601 burn survivors. Exploratory factor analysis and confirmatory factor analysis (CFA) were used to identify the underlying structure of the data. Using item response theory methods, a Graded Response Model was applied for each identified sub-domain. The resultant multidimensional LIBRE Profile can be administered via Computerized Adaptive Testing (CAT) or fixed short forms.
The study sample included 54.7% women with a mean age of 44.6 (SD 15.9) years. The average time since burn injury was 15.4 years (0-74 years) and the average total body surface area burned was 40% (1-97%). The CFA indicated acceptable fit statistics (CFI range 0.913-0.977, TLI range 0.904-0.974, RMSEA range 0.06-0.096). The six unidimensional scales were named: relationships with family and friends, social interactions, social activities, work and employment, romantic relationships, and sexual relationships. The marginal reliability of the full item bank and CATs ranged from 0.84 to 0.93, with ceiling effects less than 15% for all scales.
The LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation.
衡量烧伤对社会参与的影响对于理解和改善幸存者的生活质量至关重要，但目前尚无全面衡量烧伤幸存者社会参与情况的工具。本项目旨在开发生活影响烧伤恢复评估量表（LIBRE），这是一种患者报告的多维评估工具，用于了解烧伤后的社会参与情况。
对601名烧伤幸存者的便利样本进行了192个代表多个社会参与领域的问题调查。采用探索性因素分析和验证性因素分析（CFA）来确定数据的潜在结构。使用项目反应理论方法，对每个识别出的子领域应用等级反应模型。最终得到的多维LIBRE量表可通过计算机自适应测试（CAT）或固定简短形式进行施测。
研究样本包括54.7%的女性，平均年龄为44.6（标准差15.9）岁。烧伤后的平均时间为15.4年（0 - 74年），平均烧伤总面积为40%（1 - 97%）。CFA表明拟合统计量可接受（CFI范围为0.913 - 0.977，TLI范围为0.904 - 0.974，RMSEA范围为0.06 - 0.096）。六个单维量表分别命名为：与家人和朋友的关系、社交互动、社会活动、工作与就业、恋爱关系和性关系。整个题库和CAT的边际信度范围为0.84至0.93，所有量表的天花板效应均小于15%。
LIBRE量表是一种很有前景的烧伤后社会参与新测量工具，能够让烧伤幸存者及其护理提供者测量社会参与情况。
