Ryan Colleen M, Schneider Jeffrey C, Ni Pengsheng, Slavin Mary D, Acton Amy, Vasudevan Ananya, Sosa-Ebert Allan, Kazis Lewis E
Department of Surgery, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA.
Shriners Children's Boston, Boston, MA 02114, USA.
Eur Burn J. 2025 May 14;6(2):23. doi: 10.3390/ebj6020023.
The Life Impact Burn Recovery Evaluation (LIBRE) Profile was developed to assess long-term social participation outcomes for adult burn survivors. Traditional clinical burn recovery outcomes focus on early physical complications and psychosocial issues, but there is a growing need for quantitative measures of long-term recovery that assess experiences deemed relevant to burn survivors. The LIBRE Profile, co-produced with input from burn survivors and clinicians and grounded in the World Health Organization's International Classification of Functioning, Disability and Health (WHO-ICF) conceptual framework, addresses the measurement gap by focusing on six domains of social participation: social interactions, social activities, family and friends, work and employment, romantic relationships, and sexual relationships. The LIBRE Profile uses Item Response Theory (IRT) and computer adaptive tests (CAT) to minimize respondent burden while maintaining accuracy. Psychometric evaluations have validated the LIBRE Profile as a reliable and clinically useful tool that can help clinicians and burn survivors monitor recovery and inform personalized care. Future work includes LIBRE Profile development for pediatric populations, further international language translations, and the development of an APP for broader personal and clinical use. This paper provides a comprehensive overview of the LIBRE Profile's development, psychometric foundations, and future directions, advocating for its adoption in clinical practice and burn survivor communities.
生活影响烧伤恢复评估（LIBRE）概况旨在评估成年烧伤幸存者的长期社会参与结果。传统的临床烧伤恢复结果侧重于早期身体并发症和心理社会问题，但越来越需要对长期恢复进行量化测量，以评估与烧伤幸存者相关的经历。LIBRE概况是在烧伤幸存者和临床医生的参与下共同制定的，并以世界卫生组织的《国际功能、残疾和健康分类》（WHO-ICF）概念框架为基础，通过关注社会参与的六个领域来填补测量空白：社交互动、社会活动、家人和朋友、工作与就业、恋爱关系和性关系。LIBRE概况使用项目反应理论（IRT）和计算机自适应测试（CAT），在保持准确性的同时尽量减轻受访者负担。心理测量评估已证实LIBRE概况是一种可靠且临床有用的工具，可帮助临床医生和烧伤幸存者监测恢复情况并为个性化护理提供参考。未来的工作包括为儿科人群开发LIBRE概况、进一步进行国际语言翻译以及开发一款供更广泛个人和临床使用的应用程序。本文全面概述了LIBRE概况的发展、心理测量基础和未来方向，倡导在临床实践和烧伤幸存者社区中采用该概况。
