Introduction to the Special Section: Disorders of Sex Development.
作者信息
Sandberg David E, Pasterski Vickie, Callens Nina
机构信息
Department of Pediatrics and Communicable Diseases, University of Michigan Medical School, Ann Arbo, Michigan, USA.
Department of Paediatrics, University of Cambridge, Cambridge, UK.
出版信息
J Pediatr Psychol. 2017 Jun 1;42(5):487-495. doi: 10.1093/jpepsy/jsx065.
Abstract
摘要
相似文献
1
Introduction to the Special Section: Disorders of Sex Development.特刊介绍：性发育障碍
J Pediatr Psychol. 2017 Jun 1;42(5):487-495. doi: 10.1093/jpepsy/jsx065.
2
Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex.大多数有先天性肾上腺皮质增生症终生经历的女性及其父母并不认为患有先天性肾上腺皮质增生症的女性是雌雄同体。
J Pediatr Urol. 2021 Apr;17(2):210.e1-210.e9. doi: 10.1016/j.jpurol.2020.09.009. Epub 2020 Sep 16.
3
A Life Course Perspective on the Sexual Development of Young Intersex People.从生命历程视角看年轻双性人的性发育
Healthcare (Basel). 2024 Jan 18;12(2):239. doi: 10.3390/healthcare12020239.
4
Stigma Associated with Classical Congenital Adrenal Hyperplasia in Women's Sexual Lives.与女性性生活相关的经典型先天性肾上腺皮质增生症的污名。
Arch Sex Behav. 2018 May;47(4):943-951. doi: 10.1007/s10508-017-1003-8. Epub 2017 May 18.
5
Dealing With Uncertainty and Lack of Knowledge in Diverse Sex Development: Controversies on Early Surgery and Questions of Consent.应对性发育差异中的不确定性和知识匮乏：早期手术的争议与同意问题
Sex Med. 2020 Sep;8(3):472-489. doi: 10.1016/j.esxm.2020.03.002. Epub 2020 Jun 3.
6
Intersex people's perspectives on affirming healthcare practices: A qualitative study.双性人的肯定性医疗实践观点：一项定性研究。
Soc Sci Med. 2023 Jul;329:116047. doi: 10.1016/j.socscimed.2023.116047. Epub 2023 Jun 24.
7
Intersexuality/Differences of Sex Development through the Discourse of Intersex People, Their Relatives, and Health Experts: A Descriptive Qualitative Study.通过双性人、他们的亲属和健康专家的话语探讨双性/性发育差异：一项描述性定性研究。
Healthcare (Basel). 2022 Apr 2;10(4):671. doi: 10.3390/healthcare10040671.
8
Public understanding of intersex: an update on recent findings.公众对间性的理解：最新发现的更新。
Int J Impot Res. 2023 Feb;35(1):72-77. doi: 10.1038/s41443-021-00485-w. Epub 2022 Jan 14.
9
'That decision really was mine…'. Insider perspectives on health care controversies about intersex/diverse sex development.“那个决定真的是我的......”。关于两性畸形/性别多样性发育的医疗保健争议的内幕观点。
Cult Health Sex. 2021 Apr;23(4):472-483. doi: 10.1080/13691058.2021.1892828. Epub 2021 Mar 23.
10
Introduction to the Special Section on Culture and Variants of Sex/Gender: Bias and Stigma.
Arch Sex Behav. 2017 Feb;46(2):337-339. doi: 10.1007/s10508-016-0871-7. Epub 2016 Sep 29.
引用本文的文献
1
Public understanding of intersex: an update on recent findings.公众对间性的理解：最新发现的更新。
Int J Impot Res. 2023 Feb;35(1):72-77. doi: 10.1038/s41443-021-00485-w. Epub 2022 Jan 14.
2
Patients with disorders of sex development.性发育障碍患者。
Ann Pediatr Endocrinol Metab. 2021 Jun;26(2):74-79. doi: 10.6065/apem.2040240.120. Epub 2021 Jun 30.
3
Post-operative complications following masculinizing genitoplasty in moderate to severe genital atypia: results from a multicenter, observational prospective cohort study.中重度生殖器发育不良患者行男性化生殖器成形术后的术后并发症：一项多中心、观察性前瞻性队列研究的结果。
J Pediatr Urol. 2021 Jun;17(3):379-386. doi: 10.1016/j.jpurol.2021.02.006. Epub 2021 Feb 19.
4
Distress Trajectories for Parents of Children With DSD: A Growth Mixture Model.性发育异常儿童父母的困扰轨迹：增长混合模型。
J Pediatr Psychol. 2021 Jun 3;46(5):588-598. doi: 10.1093/jpepsy/jsab004.
5
Post-operative complications following feminizing genitoplasty in moderate to severe genital atypia: Results from a multicenter, observational prospective cohort study.中重度生殖器发育异常患者女性化生殖器成形术后的并发症：一项多中心、前瞻性观察队列研究的结果
J Pediatr Urol. 2020 Oct;16(5):568-575. doi: 10.1016/j.jpurol.2020.05.166. Epub 2020 Jun 1.
6
Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with Myalgic encephalomyelitis.预测全科医生就诊：一项多分类逻辑回归调查，研究了居住在英国的肌痛性脑脊髓炎患者队列中的全科医生就诊情况。
BMC Fam Pract. 2020 Jun 10;21(1):105. doi: 10.1186/s12875-020-01160-7.
7
Predictors of Psychosocial Distress in Parents of Young Children with Disorders of Sex Development.儿童性发育障碍患儿父母的心理困扰预测因素。
J Urol. 2019 Nov;202(5):1046-1051. doi: 10.1097/JU.0000000000000424. Epub 2019 Oct 9.
本文引用的文献
1
Prognostic Disclosures to Children: A Historical Perspective.向儿童披露预后情况：历史视角
Pediatrics. 2016 Sep;138(3). doi: 10.1542/peds.2016-1278. Epub 2016 Aug 25.
2
Coping With Diverse Sex Development: Treatment Experiences and Psychosocial Support During Childhood and Adolescence and Adult Well-Being.应对性发育差异：儿童、青少年时期的治疗经历与心理社会支持及成人幸福感
J Pediatr Psychol. 2017 Jun 1;42(5):504-519. doi: 10.1093/jpepsy/jsw058.
3
Stigma in Medical Settings As Reported Retrospectively by Women With Congenital Adrenal Hyperplasia (CAH) for Their Childhood and Adolescence.先天性肾上腺皮质增生症（CAH）女性对其童年和青少年时期医疗环境中耻辱感的回顾性报告
J Pediatr Psychol. 2017 Jun 1;42(5):496-503. doi: 10.1093/jpepsy/jsw034.
4
Surgery in disorders of sex development (DSD) with a gender issue: If (why), when, and how?性别发育障碍（DSD）相关外科手术中的性别问题：是否（为什么）、何时以及如何手术？
J Pediatr Urol. 2016 Jun;12(3):139-49. doi: 10.1016/j.jpurol.2016.04.001. Epub 2016 Apr 9.
5
Disorders of Sex Development: Pediatric Psychology and the Genital Exam.
J Pediatr Psychol. 2017 Jun 1;42(5):530-543. doi: 10.1093/jpepsy/jsw015.
6
Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents.为患有性发育障碍（DSD）的幼儿及其父母开发与健康相关的生活质量工具。
J Pediatr Psychol. 2017 Jun 1;42(5):544-558. doi: 10.1093/jpepsy/jsw022.
7
The experience of women living with Congenital Adrenal Hyperplasia: impact of the condition and the care given.先天性肾上腺皮质增生症女性患者的经历：病症及所接受护理的影响。
Clin Endocrinol (Oxf). 2016 Jul;85(1):21-8. doi: 10.1111/cen.13054. Epub 2016 Apr 13.
8
From Knowing Nothing to Knowing What, How and Now: Parents' Experiences of Caring for their Children With Congenital Adrenal Hyperplasia.从一无所知到知晓是什么、如何做以及当下情况：父母照顾先天性肾上腺皮质增生症患儿的经历。
J Pediatr Psychol. 2017 Jun 1;42(5):520-529. doi: 10.1093/jpepsy/jsw001.
9
Global Disorders of Sex Development Update since 2006: Perceptions, Approach and Care.2006年以来性发育全球疾病最新进展：认识、处理与照护
Horm Res Paediatr. 2016;85(3):158-80. doi: 10.1159/000442975. Epub 2016 Jan 28.
10
Parental choice on normalising cosmetic genital surgery.父母对正常化生殖器整形手术的选择。
BMJ. 2015 Sep 28;351:h5124. doi: 10.1136/bmj.h5124.
Zotero 插件