Meyer-Bahlburg Heino F L, Khuri Jananne, Reyes-Portillo Jazmin, New Maria I
NYS Psychiatric Institute, Riverside Drive, Unit 15, New York, NY, USA.
Department of Psychiatry, College of Physicians and Surgeons of Columbia University, Riverside Drive, Unit 15, New York, NY, USA.
J Pediatr Psychol. 2017 Jun 1;42(5):496-503. doi: 10.1093/jpepsy/jsw034.
To perform a qualitative study of stigma experienced in medical settings by children and adolescents with congenital genital ambiguity (CGA).
62 women with classical congenital adrenal hyperplasia (CAH) of variable severity took part in a qualitative retrospective interview that focused on the impact of CAH and its medical treatment, with an emphasis on childhood and adolescence. Categorization of stigmatization was based on deductive content analysis of the interview transcripts.
Many women recalled experiencing the genital examinations in childhood and adolescence as adverse, stigmatizing events, leading to avoidance reactions and self-perception as abnormal, particularly when the examinations included groups of trainees. Some women also experienced as adverse the nonverbal and verbal reactions of individual physicians who were unfamiliar with CGA.
Genital examinations constitute salient events for children and adolescents with CGA. They are easily experienced as strongly stigmatizing, especially when combined with teaching.
对患有先天性生殖器模糊（CGA）的儿童和青少年在医疗环境中所经历的耻辱感进行定性研究。
62名患有不同严重程度经典型先天性肾上腺皮质增生症（CAH）的女性参与了一项定性回顾性访谈，该访谈聚焦于CAH及其医学治疗的影响，重点是童年和青春期。耻辱感的分类基于对访谈记录的演绎性内容分析。
许多女性回忆起童年和青春期的生殖器检查是不良的、带有耻辱感的事件，导致了回避反应以及自我认知为异常，尤其是当检查中有实习医生群体在场时。一些女性还将个别不熟悉CGA的医生的非言语和言语反应视为不良经历。
生殖器检查对于患有CGA的儿童和青少年来说是突出事件。它们很容易被强烈地体验为带有耻辱感，尤其是在与教学相结合时。
