Corathers Sarah D, Mara Constance A, Chundi Pavan K, Kichler Jessica C
Division of Endocrinology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, MLC 7012, Cincinnati, OH, 45229, USA.
James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Curr Diab Rep. 2017 Jul;17(7):45. doi: 10.1007/s11892-017-0872-5.
The purpose of this review is to define psychosocial patient-reported outcomes (PROs) relevant to pediatric and adolescent diabetes populations. Potential domains for PROs include a spectrum of emotional, behavioral, social, physical, overall health, and/or care management areas. A literature review of potential PRO measures, selection criteria, and implementation strategies including a case example will be presented.
Among the pediatric, adolescent, and emerging adult populations, research indicates a relative higher risk for distress, depression, anxiety, and eating disorders as compared to peers without diabetes. Use of PRO measures can expand providers' focus beyond glycemic control, or simply hemoglobin A1c, to better appreciate the impact of diabetes on the whole child/adolescent, and provide services that address patients' individually identified needs, which are most salient to them. Successful selection and implementation of psychosocial PRO measures should be designed to include pathways for real-time provider interaction with the patient and respective PRO data to guide clinical care.
本综述旨在明确与儿童及青少年糖尿病群体相关的患者报告的社会心理结局（PROs）。PROs的潜在领域包括一系列情感、行为、社交、身体、整体健康和/或护理管理领域。将呈现对潜在PRO测量方法、选择标准及实施策略的文献综述，并附上一个案例。
在儿童、青少年及刚成年的人群中，研究表明与无糖尿病的同龄人相比，他们出现困扰、抑郁、焦虑和饮食失调的风险相对更高。使用PRO测量方法可使医疗服务提供者的关注点从血糖控制（或仅仅是糖化血红蛋白A1c）扩展到更好地认识糖尿病对整个儿童/青少年的影响，并提供满足患者个体明确需求的服务，这些需求对他们最为重要。成功选择和实施社会心理PRO测量方法应设计为包含医疗服务提供者与患者实时互动以及相应PRO数据的途径，以指导临床护理。
