斑秃患儿家庭成员团体治疗支持的重要性：一项横断面调查研究
Importance of Group Therapeutic Support for Family Members of Children with Alopecia Areata: A Cross-Sectional Survey Study.
作者信息
Aschenbeck Kelly A, McFarland Sarah L, Hordinsky Maria K, Lindgren Bruce R, Farah Ronda S
机构信息
School of Medicine, University of Minnesota, Minneapolis, MN.
Department of Dermatology, University of Minnesota, Minneapolis, MN.
出版信息
Pediatr Dermatol. 2017 Jul;34(4):427-432. doi: 10.1111/pde.13176. Epub 2017 May 16.
BACKGROUND/OBJECTIVES: The psychological effect of alopecia areata (AA) is well documented, but group interaction may help lessen this burden. We aimed to determine factors that draw patients with AA and their families to group events.
METHODS
Surveys were administered at the annual alopecia areata bowling social in 2015 and 2016. This event is a unique opportunity for children with AA and their families to meet others with the disease and connect with local support group resources from the Minnesota branch of the National Alopecia Areata Foundation. Data from 2015 and 2016 were combined. Comparisons of subgroups were performed using Fisher exact tests for response frequencies and percentages and two-sample t tests for mean values.
RESULTS
An equal number of men and women participated in the study (n = 13 each). The average age was 41.1 years. There were no significant differences (p > 0.05) in survey responses based on respondent age or sex. Twenty-three (88.5%) attendees sought to connect with others with AA and met three or more people during the event. Seventeen (65.4%) also attended other support group events. Twelve respondents (46.2%) came to support a friend or family member. One hundred percent of attendees identified socializing with others with AA as important.
CONCLUSIONS
Group interaction is an important source of therapeutic support for people with AA and their families.
背景/目的：斑秃（AA）的心理影响已有充分记录，但群体互动可能有助于减轻这种负担。我们旨在确定吸引斑秃患者及其家人参加群体活动的因素。
方法
在2015年和2016年的年度斑秃保龄球社交活动中进行了调查。该活动为患有斑秃的儿童及其家人提供了一个独特的机会，使他们能够结识其他患有该病的人，并与国家斑秃基金会明尼苏达分会的当地支持小组资源建立联系。将2015年和2016年的数据合并。使用Fisher精确检验对反应频率和百分比进行亚组比较，并使用两样本t检验对均值进行比较。
结果
参与研究的男性和女性人数相等（各13人）。平均年龄为41.1岁。根据受访者的年龄或性别，调查反应没有显著差异（p>0.05）。23名（88.5%）参与者寻求与其他斑秃患者建立联系，并在活动期间结识了三个或更多的人。17名（65.4%）参与者还参加了其他支持小组活动。12名受访者（46.2%）是为了支持朋友或家人而来。100%的参与者认为与其他斑秃患者社交很重要。
结论
群体互动是斑秃患者及其家人治疗支持的重要来源。
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