Ye Clara Y, Jeppson Thor C, Kleinmaus Ellen M, Kliems Harald M, Schopp Jennifer M, Cox Elizabeth D
Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin (Ms Ye, Mr Jeppson, Ms Kleinmaus, Mr Kliems, Ms Schopp, Dr Cox).
Diabetes Educ. 2017 Jun;43(3):251-259. doi: 10.1177/0145721717699891. Epub 2017 Mar 21.
Purpose The purpose of the study was to describe outcomes that matter to teens with type 1 diabetes. Understanding outcomes that matter to teens could support successful interventions to improve diabetes self-management. Methods Fifty publicly available posts published in the "teen" sections of 2 major diabetes online forums between 2011 and 2013 were analyzed using qualitative research methods. From each post, content and descriptive data (eg, duration of diabetes and age) were collected. Two members of the research team independently used open coding techniques to identify outcomes (defined as impacts or consequences of type 1 diabetes) and organized them into themes and subthemes. A codebook was jointly developed to facilitate the identification of meaningful outcomes from the posts. Results Teens' average age was 15.7 years, and the average time since diabetes diagnosis was 6.3 years. The 3 most commonly mentioned outcomes were (1) interactions with peers ("I want to talk to someone who understands"), (2) emotional well-being ("Diabetes makes me want to cry"), and (3) blood glucose management ("My blood sugar never goes down"). Other identified outcomes included (4) physical well-being, (5) education and motivation of others, (6) family interactions, (7) academic achievement, and (8) interactions with important others such as teachers. Conclusions While teens are concerned about control of their blood glucose, there are many other outcomes that matter to them. Health care providers and diabetes educators may want to consider these other outcomes when motivating teens with type 1 diabetes to improve blood glucose control.
目的 本研究的目的是描述对1型糖尿病青少年重要的结果。了解对青少年重要的结果有助于成功开展干预措施以改善糖尿病自我管理。方法 采用定性研究方法分析了2011年至2013年期间在2个主要糖尿病在线论坛的“青少年”板块发布的50篇公开帖子。从每篇帖子中收集内容和描述性数据（如糖尿病病程和年龄）。研究团队的两名成员独立使用开放式编码技术识别结果（定义为1型糖尿病的影响或后果），并将其组织成主题和子主题。共同制定了一本编码手册，以方便从帖子中识别有意义的结果。结果 青少年的平均年龄为15.7岁，自糖尿病诊断以来的平均时间为6.3年。最常提到的3个结果是：（1）与同龄人互动（“我想和理解我的人交谈”），（2）情绪健康（“糖尿病让我想哭”），（3）血糖管理（“我的血糖一直降不下来”）。其他确定的结果包括：（4）身体健康，（5）对他人的教育和激励，（6）家庭互动，（7）学业成绩，（8）与教师等重要他人的互动。结论 虽然青少年关注血糖控制，但还有许多其他对他们重要的结果。医疗保健提供者和糖尿病教育者在激励1型糖尿病青少年改善血糖控制时，可能需要考虑这些其他结果。
