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“我真的能六十年不再患癌症吗?” 年轻女性乳腺癌病史患者叙述中的不确定性与阈限状态。

'Am I really gonna go sixty years without getting cancer again?' Uncertainty and liminality in young women's accounts of living with a history of breast cancer.

作者信息

Rees Sophie

机构信息

University of Warwick, UK.

出版信息

Health (London). 2017 May;21(3):241-258. doi: 10.1177/1363459316677628. Epub 2016 Dec 21.

DOI:10.1177/1363459316677628
PMID:28521649
Abstract

Although much research has examined the experience of breast cancer, the distinctive perspectives and lives of young women have been relatively neglected. Women diagnosed with breast cancer under the age of 45, and who had completed their initial treatment, were interviewed, and social constructionist grounded theory methods were used to analyse the data. The end of initial treatment was accompanied by a sense of unease and uncertainty in relation to recurrence and survival, and also fertility and menopausal status. The young women's perceptions about the future were altered, and their fears about recurrence were magnified by the possibility of many decades ahead during which breast cancer could recur. The implications for the young women's life course, in terms of whether they would be able to have children, would not become clear for several years after initial treatment. This resulted in a liminal state, in which young women found themselves neither cancer-free nor cancer patients, neither pre- nor post-menopausal, neither definitively fertile nor infertile. This liminal state had a profound impact on young women's identities and sense of agency. This extends previous understanding of life after cancer, exploring the age-related dimensions of liminality.

摘要

尽管已有大量研究探讨了乳腺癌患者的经历,但年轻女性独特的观点和生活却相对被忽视了。研究人员对45岁以下且已完成初始治疗的乳腺癌女性患者进行了访谈,并采用社会建构主义扎根理论方法对数据进行分析。初始治疗结束时,患者对于复发和生存、生育能力和绝经状态感到不安和不确定。年轻女性对未来的看法发生了改变,她们对复发的恐惧因乳腺癌可能在未来几十年复发的可能性而加剧。初始治疗几年后,年轻女性能否生育对其人生轨迹的影响才会变得清晰。这导致了一种临界状态,在这种状态下,年轻女性发现自己既不是无癌患者也不是癌症患者,既未绝经也未处于绝经后,既不是绝对可育也不是不育。这种临界状态对年轻女性的身份认同和能动性产生了深远影响。这扩展了以往对癌症后生活的理解,探索了与年龄相关的临界状态维度。

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