Baum Eleonore, Bernhardsgrütter Daniela, Engst Ramona, Maurer Carola, Ebneter Jessica, Zenklusen Adrienne, Wartlsteiner Barbara, Barandun Lotti, Neher Andrea, Koller Antje, Kobleder Andrea
Institute of Applied Nursing Science, School of Health, Eastern Switzerland University of Applied Sciences, Neumarkt 3, Vadianstrasse 29, St. Gallen, 9000, Switzerland.
School of Health, Eastern Switzerland University of Applied Sciences, Neumarkt 3, Vadianstrasse 29, St. Gallen, 9000, Switzerland.
BMC Womens Health. 2025 Jan 15;25(1):25. doi: 10.1186/s12905-024-03540-y.
Women with breast cancer face a high degree of uncertainty. Trust between health providers and patients has been shown to improve patient quality of life and may enhance clinical outcomes. This study aimed to explore the meaning of trust along the treatment pathway.
The study followed a convergent mixed-methods design. We collected qualitative data longitudinally from diagnosis to follow-up using unstructured digital diaries and 45 semi-structured interviews with twelve women with breast cancer. To measure symptom burden and trust, we collected quantitative data by means of 57 questionnaires. Data analysis was based on phenomenology according to van Manen and on descriptive statistics. Data synthesis resulted in a conceptual model of trust.
The women experienced trust as a dynamic phenomenon within the biomedical cancer care "machinery". Their trust was strongly influenced by contextual factors, professionals' expertise, and person-centeredness. The relevance of trust differed according to treatment phases.
Due to a high degree of uncertainty, trust was particularly important. Professionals positively influenced the women's trust to a certain extent through a patient-centered approach and by demonstrating expertise within the biomedical cancer care "machinery". The conceptual model of trust should receive attention to bring care closer to the women's lived experience so that their care experience can be improved.
乳腺癌女性面临高度的不确定性。医疗服务提供者与患者之间的信任已被证明可改善患者生活质量，并可能提升临床治疗效果。本研究旨在探讨治疗过程中信任的意义。
本研究采用了收敛性混合方法设计。我们从诊断到随访纵向收集定性数据，使用非结构化数字日记以及对12名乳腺癌女性进行45次半结构化访谈。为了测量症状负担和信任度，我们通过57份问卷收集定量数据。数据分析基于范曼的现象学和描述性统计。数据综合得出了一个信任概念模型。
这些女性将信任体验为生物医学癌症护理“机制”中的一种动态现象。她们的信任受到情境因素、专业人员的专业知识以及以患者为中心的强烈影响。信任的相关性因治疗阶段而异。
由于高度的不确定性，信任尤为重要。专业人员通过以患者为中心的方法以及在生物医学癌症护理“机制”中展示专业知识，在一定程度上对这些女性的信任产生了积极影响。信任概念模型应受到关注，以使护理更贴近女性的生活体验，从而改善她们的护理体验。
