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脑瘫学生的学业成就与参与度:一项探索多元视角的定性研究

School success and participation for students with cerebral palsy: a qualitative study exploring multiple perspectives.

作者信息

Bourke-Taylor Helen M, Cotter Claire, Lalor Aislinn, Johnson Lindy

机构信息

a Occupational Therapy Department , School of Primary and Allied Health Care, Monash University , Frankston , Victoria , Australia.

b Cerebral Palsy Education Centre , Glen Waverley , Australia.

出版信息

Disabil Rehabil. 2018 Sep;40(18):2163-2171. doi: 10.1080/09638288.2017.1327988. Epub 2017 May 19.

Abstract

PURPOSE

This qualitative study investigated perceived successful school experiences for students with cerebral palsy in Australia. Participation and appropriate support in school are complex concepts, although few studies have investigated all stakeholders' perspectives.

METHODS

Phenomenology informed the study that centered on the concept of a successful school experience. In-depth interviews occurred with students (n = 7), parents (n = 11), teachers (n = 10), school principals (n = 9) and allied health practitioners (n = 10) to gain the perspective from multiple vantage points. Specific research questions, interview guides and demographic questionnaires were configured for each group. Interviews were analyzed thematically within and between groups.

RESULTS

Three key themes emerged: Collaborative partnerships between families, schools and outside organizations; School culture and attitude is key; and, allied health practitioners are part of home and school teams.

CONCLUSIONS

Student and school success was impacted substantially by the capacity of adults in the student's life to collaborate - family, school professionals and allied health practitioners. An inclusive school culture was crucial to students with cerebral palsy. All parties needed to prioritize promotion of an open and positive school culture built around problem-solving inclusive practices. Involved people, such as allied health practitioners, bring knowledge and skills that are not otherwise readily available in school environments. Implications for rehabilitation Students with cerebral palsy have high needs at school and allied health practitioners have a role advocating for, educating and providing support to students within the school. Teachers of students with cerebral palsy need education, training and support from allied health practitioners. The need for allied health and rehabilitation services continues for children and youth with cerebral palsy outside of school and across the schooling years. School professionals; allied health practitioners; families and students can work together to improve the student experience.

摘要

目的

本定性研究调查了澳大利亚脑瘫学生所感知到的成功学校经历。尽管很少有研究调查所有利益相关者的观点,但学校参与和适当支持是复杂的概念。

方法

本研究以成功学校经历的概念为中心,采用现象学方法。对学生(n = 7)、家长(n = 11)、教师(n = 10)、学校校长(n = 9)和专职医疗人员(n = 10)进行了深入访谈,以从多个有利视角获取观点。为每个群体配置了特定的研究问题、访谈指南和人口统计问卷。对访谈进行了组内和组间的主题分析。

结果

出现了三个关键主题:家庭、学校和外部组织之间的合作伙伴关系;学校文化和态度是关键;专职医疗人员是家庭和学校团队的一部分。

结论

学生生活中的成年人(家庭、学校专业人员和专职医疗人员)的合作能力对学生和学校的成功有重大影响。包容的学校文化对脑瘫学生至关重要。所有各方都需要优先促进围绕解决问题的包容做法建立开放和积极的学校文化。参与其中的人员,如专职医疗人员,带来了学校环境中不易获得的知识和技能。对康复的启示脑瘫学生在学校有很高的需求,专职医疗人员在学校内为学生提供倡导、教育和支持方面发挥着作用。脑瘫学生的教师需要专职医疗人员的教育、培训和支持。对于学校之外以及整个上学期间的脑瘫儿童和青少年来说,对专职医疗和康复服务的需求持续存在。学校专业人员、专职医疗人员、家庭和学生可以共同努力改善学生体验。

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