Africa Lethabo E, Human Anri, Tshabalala Muziwakhe D
Department of Physiotherapy, Faculty of Healthcare Sciences, Sefako Makgatho Healthcare Sciences University, Pretoria, South Africa.
Department of Physiotherapy, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa.
Afr J Disabil. 2023 Jan 31;12:1058. doi: 10.4102/ajod.v12i0.1058. eCollection 2023.
Participation in activities of daily living (ADL), education, leisure and play in children living with cerebral palsy (CP) may be affected by various factors, as outlined in the International Classification of Functioning, Disability and Health Framework (ICF). The aim of this study was to describe the participation patterns of a group of these children.
This study aimed to describe participation patterns in ADL, education, leisure and play activities of children living with CP in Modimolle.
An exploratory-descriptive qualitative (EDQ) study design was used. A researcher-constructed bio-demographic data sheet and a semi-structured interview schedule were used to collect data from the primary caregivers of children (5-17 years) living with CP in Modimolle. Interviews were transcribed verbatim, translated from Sepedi to English and analysed using the content analysis approach and NVivo software.
The findings of this study indicated that children living with CP in Modimolle require set-up and assistance to participate in various ADL such as self-care, family and community activities. They also participate in formal and informal educational programmes as well as active and passive leisure and play activities. However, at the moment, they have limited opportunities to participate because of resource constraints and inaccessible infrastructure.
Although children with CP in Modimolle perform some ADL, and participate in educational, leisure and play activities, they are not fully integrated into their community. Legislative support and policy implementation are required to improve participation and integration of children living with CP. Further studies on community-specific integrative strategies to enhance participation among children living with disabilities are recommended.
This paper provides valuable information on the participation patterns of children with CP living in a rural area of South Africa. The findings can assist with development and implementation of community-specific, integrative health and social care strategies to enhance participation among children living with disabilities.
正如《国际功能、残疾和健康分类框架》（ICF）中所概述的，脑瘫（CP）患儿在日常生活活动（ADL）、教育、休闲和游戏方面的参与可能受到多种因素的影响。本研究的目的是描述一组此类患儿的参与模式。
本研究旨在描述莫迪莫勒地区脑瘫患儿在ADL、教育、休闲和游戏活动中的参与模式。
采用探索性描述性定性（EDQ）研究设计。使用研究者编制的生物人口学数据表和半结构化访谈提纲，从莫迪莫勒地区5至17岁脑瘫患儿的主要照顾者那里收集数据。访谈内容逐字记录，从塞佩迪语翻译成英语，并使用内容分析法和NVivo软件进行分析。
本研究结果表明，莫迪莫勒地区的脑瘫患儿在参与各种ADL（如自我护理、家庭和社区活动）时需要设施和帮助。他们还参与正规和非正规教育项目以及主动和被动的休闲及游戏活动。然而，目前由于资源限制和基础设施不便，他们参与的机会有限。
尽管莫迪莫勒地区的脑瘫患儿进行一些ADL，并参与教育、休闲和游戏活动，但他们并未完全融入社区。需要立法支持和政策实施来改善脑瘫患儿的参与和融入情况。建议进一步开展关于特定社区综合策略的研究，以提高残疾儿童的参与度。
本文提供了关于南非农村地区脑瘫患儿参与模式的宝贵信息。研究结果有助于制定和实施针对特定社区的综合健康和社会护理策略，以提高残疾儿童的参与度。
