Furness Caroline L, Smith Lesley, Morris Eva, Brocklehurst Caroline, Daly Sasha, Hough Rachael E
1 Bristol Haematology Oncology Centre , Bristol, United Kingdom .
2 Division of Epidemiology and Biostatistics, Leeds Institute of Cardiovascular and Metabolic Medicine, School of Medicine, University of Leeds , Leeds, United Kingdom .
J Adolesc Young Adult Oncol. 2017 Sep;6(3):450-458. doi: 10.1089/jayao.2016.0058. Epub 2017 May 19.
Improving outcomes for teenagers and young adults (TYA) with cancer is a key element of the national cancer strategy in England. Recognition of the unique needs of this group has led to the development of recommendations for specific models of care and delivery of this care through the provision of dedicated clinical units in principal treatment centers (PTCs) across the United Kingdom. The aim of this study was to understand the current cancer patient experience for this patient group. We aimed to determine whether treatment experience is influenced by place of treatment and whether it has changed over time using patient-reported data from national cancer patient experience surveys. This study highlights that a prolonged pathway to diagnosis remains an issue for the TYA group and identifies areas on which quality improvement measures for TYA services should focus, including communication and involvement of the patient in treatment decisions. Positive experiences for the TYA group such as involvement in research were also highlighted. Treatment within a TYA PTC was associated with positive patient perception in a number of key areas highlighting the need for future studies to fully elucidate the impact of the full range of TYA services now available in the United Kingdom on both patient experience and outcome.
改善青少年和青年癌症患者（TYA）的治疗效果是英国国家癌症战略的关键要素。认识到这一群体的独特需求后，英国通过在主要治疗中心（PTC）设立专门的临床科室，制定了针对特定护理模式及护理提供方式的建议。本研究旨在了解该患者群体当前的癌症患者体验。我们旨在利用全国癌症患者体验调查中的患者报告数据，确定治疗体验是否受治疗地点的影响以及其是否随时间发生了变化。本研究强调，诊断过程漫长仍是TYA群体面临的一个问题，并确定了TYA服务质量改进措施应关注的领域，包括沟通以及患者参与治疗决策。研究还突出了TYA群体的积极体验，如参与研究。在多个关键领域，TYA PTC内的治疗与患者的积极认知相关，这凸显了未来研究全面阐明英国现有的各类TYA服务对患者体验和治疗效果的影响的必要性。
