Noergaard Birgitte, Sandvei Marianne, Rottmann Nina, Johannessen Helle, Wiil Uffe, Schmidt Thomas, Pedersen Susanne S
Research Unit of User Perspectives, Department of Public Health, University of Southern Denmark, Odense, Denmark.
Department of Psychology, University of Southern Denmark, Odense, Denmark.
JMIR Res Protoc. 2017 May 17;6(5):e75. doi: 10.2196/resprot.7084.
The use of telemedicine technologies in health care has increased substantially, together with a growing interest in participatory design methods when developing telemedicine approaches.
We present lessons learned from a case study involving patients with heart disease and health care professionals in the development of a personalized Web-based health care intervention.
We used a participatory design approach inspired by the method for feasibility studies in software development. We collected qualitative data using multiple methods in 3 workshops and analyzed the data using thematic analysis. Participants were 7 patients with diagnosis of heart disease, 2 nurses, 1 physician, 2 systems architects, 3 moderators, and 3 observers.
We present findings in 2 parts. (1) Outcomes of the participatory design process: users gave valuable feedback on ease of use of the platforms' tracking tools, platform design, terminology, and insights into patients' monitoring needs, information and communication technologies skills, and preferences for self-management tools. (2) Experiences from the participatory design process: patients and health care professionals contributed different perspectives, with the patients using an experience-based approach and the health care professionals using a more attitude-based approach.
The essential lessons learned concern planning and organization of workshops, including the finding that patients engaged actively and willingly in a participatory design process, whereas it was more challenging to include and engage health care professionals.
远程医疗技术在医疗保健中的应用大幅增加，同时在开发远程医疗方法时，人们对参与式设计方法的兴趣也与日俱增。
我们介绍在一项涉及心脏病患者和医疗保健专业人员的案例研究中，关于开发基于网络的个性化医疗保健干预措施所吸取的经验教训。
我们采用了一种受软件开发可行性研究方法启发的参与式设计方法。我们在3次研讨会上使用多种方法收集定性数据，并使用主题分析法对数据进行分析。参与者包括7名确诊为心脏病的患者、2名护士、1名医生、2名系统架构师、3名主持人和3名观察员。
我们将研究结果分为两部分呈现。（1）参与式设计过程的成果：用户对平台跟踪工具的易用性、平台设计、术语以及对患者监测需求、信息和通信技术技能以及自我管理工具偏好的洞察提供了有价值的反馈。（2）参与式设计过程的经验：患者和医疗保健专业人员提供了不同的观点，患者采用基于经验的方法，而医疗保健专业人员采用更基于态度的方法。
吸取的重要经验教训涉及研讨会的规划和组织，包括发现患者积极主动地参与参与式设计过程，而让医疗保健专业人员参与进来则更具挑战性
