Hartman Laura R, McPherson Amy C, Maxwell Joanne, Lindsay Sally
a Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , ON , Canada.
b Department of Occupational Science and Occupational Therapy , University of Toronto , Toronto , ON , Canada.
Dev Neurorehabil. 2018 Jul;21(5):312-325. doi: 10.1080/17518423.2017.1323969. Epub 2017 May 23.
To explore the utility of the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) for informing transition-related programs for youth with chronic conditions moving into adult healthcare settings, using an exemplar spina bifida program.
Semi-structured in-depth interviews were conducted with 53 participants (9 youth and 11 parents who participated in a spina bifida transition program, 12 young adults who did not, 12 clinicians, and 9 key informants involved in development/implementation). Interview transcripts were thematically analyzed, and then further coded using ICF-CY domain codes.
ICF-CY domains captured many key areas regarding individuals" transitions to adult care and adult functioning, but did not fully capture concepts of transition program experience, independence, and parents" role.
The ICF-CY framework captures some experiences of transitions to adult care, but should be considered in conjunction with other models that address issues outside of the domains covered by the ICF-CY.
以脊柱裂项目为例，探讨《国际功能、残疾和健康分类-儿童与青少年版》（ICF-CY）在为患有慢性病的青少年转入成人医疗环境的过渡相关项目提供信息方面的效用。
对53名参与者进行了半结构化深入访谈（9名参与脊柱裂过渡项目的青少年和11名家长、12名未参与的年轻人、12名临床医生以及9名参与项目开发/实施的关键信息提供者）。对访谈记录进行了主题分析，然后使用ICF-CY领域代码进一步编码。
ICF-CY领域涵盖了许多关于个体向成人护理过渡和成人功能的关键领域，但未完全涵盖过渡项目体验、独立性和家长角色等概念。
ICF-CY框架涵盖了向成人护理过渡的一些经历，但应结合其他解决ICF-CY所涵盖领域之外问题的模型来考虑。
