Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
Department of Physical Medicine and Rehabilitation, University Children's Hospital, Belgrade, Serbia.
Eur J Phys Rehabil Med. 2022 Aug;58(4):511-519. doi: 10.23736/S1973-9087.22.07536-0. Epub 2022 May 16.
Spinal dysraphism (SD) or spina bifida (SB) is a congenital deformity that results from embryonic neural tube closure failure during fetal development. This evidence-based position paper represents the official position of the European Union through the UEMS PRM Section. This paper aims to evaluate the role of the physical and rehabilitation medicine (PRM) physician and PRM practice for children and adults with spinal dysraphism. A systematic literature review and a consensus procedure involved all European countries delegates represented in the UEMS PRM section through a Delphi process. The systematic literature review is reported together with thirty-two recommendations resulting from the Delphi procedure. The professional role of the PRM physician requires specific expertise in the treatment of patients with SD to plan, lead and monitor the rehabilitation process in an interdisciplinary setting and to participate in the assessment of the needs of these patients in the transitional phase from childhood to adulthood, with particular attention to the activity limitation and participation restriction.
脊柱发育不良（SD）或脊柱裂（SB）是一种先天性畸形，是胎儿发育过程中胚胎神经管闭合失败导致的。本循证立场文件代表了欧洲联盟通过 UEMS PRM 分会的官方立场。本文旨在评估物理医学与康复医学（PRM）医师及其 PRM 实践在患有脊柱发育不良的儿童和成人中的作用。通过德尔菲法，系统文献回顾和共识程序涉及到代表 UEMS PRM 分会的所有欧洲国家代表。系统文献回顾与德尔菲程序产生的三十二条建议一并报告。PRM 医师的专业角色需要在 SD 患者的治疗方面具有特定的专业知识，以便在跨学科环境中规划、领导和监测康复过程，并参与评估这些患者从儿童到成年的过渡阶段的需求，特别关注活动受限和参与受限。
