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提供协调一致的癌症护理——挪威癌症协调员对其角色体验的定性研究。

Providing Coordinated Cancer Care-A Qualitative Study of Norwegian Cancer Coordinators' Experiences of Their Role.

机构信息

Author Affiliations: Department of Physiotherapy, Faculty of Health Sciences, Oslo and Akershus University College of Applied Sciences (Ms Lie and Dr Solvang); and Center for Crisis Psychology, Bergen (Dr Hauken), Norway.

出版信息

Cancer Nurs. 2018 Nov/Dec;41(6):463-472. doi: 10.1097/NCC.0000000000000504.

DOI:10.1097/NCC.0000000000000504
PMID:28537952
Abstract

BACKGROUND

There is a growing need for strategies to improve coordinated, tailored services in cancer care to meet the comprehensive needs of cancer patients. In Norway, cancer coordinators (CCs) have been established to improve coordination and patient-centeredness of services. Little is known about how CCs engage to provide patients with the needed services and support throughout the treatment.

OBJECTIVE

The aim of this study was to explore how Norwegian CCs experience their role and how they enact it in order to enhance coordinated cancer care.

METHODS

The study encompasses a qualitative, hermeneutic approach, conducting semistructured in-depth interviews of 26 Norwegian CCs. The data were analyzed using thematic analysis and discussed in the light of the salutogenic theory.

RESULTS

Cancer coordinators take a holistic approach to patient care, including both patient- and system-level activities. "Providing coordinated cancer care" emerged as an overarching topic for their role. This topic was elaborated by 3 main themes: (1) finding their place and creating their function, (2) meeting the needs of cancer patients and helping them cope, (3) promoting well-functioning cancer care systems.

CONCLUSIONS

Cancer coordinators evolved diversely, in adaption to the local context and patients' needs. The functions' diversity challenged the implementation and external role recognition. Cancer coordinators seemed to apply a salutogenic, resource-focused orientation in order to support a positive development at both the patient and the system levels.

IMPLICATIONS FOR PRACTICE

The findings reinforce the call for holistic, patient-centered services in cancer care. Cancer coordinators need appropriate support from the local management to establish the role and local collaborations.

摘要

背景

癌症护理需要采取协调一致、量身定制的策略来满足癌症患者的全面需求,因此对这些策略的需求日益增长。在挪威,设立了癌症协调员(CC)来改善服务的协调性和以患者为中心的服务。但是,对于 CC 如何参与提供患者在整个治疗过程中所需的服务和支持,人们知之甚少。

目的

本研究旨在探讨挪威 CC 如何体验他们的角色,以及他们如何实施该角色,以增强癌症护理的协调性。

方法

本研究采用定性、诠释学方法,对 26 名挪威 CC 进行半结构化深入访谈。使用主题分析对数据进行分析,并根据健康促进理论进行讨论。

结果

癌症协调员对患者护理采取整体方法,包括患者和系统层面的活动。“提供协调一致的癌症护理”是他们角色的一个总体主题。该主题通过 3 个主要主题展开:(1)找到自己的位置并创建自己的职能,(2)满足癌症患者的需求并帮助他们应对,(3)促进运作良好的癌症护理系统。

结论

癌症协调员根据当地环境和患者需求多样化发展。职能的多样性挑战了实施和外部角色的认可。癌症协调员似乎采用了健康促进、以资源为重点的方向,以支持患者和系统层面的积极发展。

实践意义

研究结果强调了癌症护理中需要采取整体、以患者为中心的服务。癌症协调员需要得到当地管理层的适当支持,以确立角色和建立当地合作。

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