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“有限关注癌症康复”-挪威初级卫生保健中癌症协调员的经验定性研究。

"A limited focus on cancer rehabilitation"-A qualitative study of the experiences from Norwegian Cancer Coordinators in Primary Health Care.

机构信息

Department of Physiotherapy, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway.

Center for Crisis Psychology, University of Bergen, Bergen, Norway.

出版信息

Eur J Cancer Care (Engl). 2019 Jul;28(4):e13030. doi: 10.1111/ecc.13030. Epub 2019 Mar 7.

DOI:10.1111/ecc.13030
PMID:30848034
Abstract

OBJECTIVE

The facilitation of complex cancer rehabilitation interventions in primary health care has become of growing importance to meet the bio-psycho-social needs of cancer survivors. However, the delivery of cancer rehabilitation is debated and services are underutilised. Cancer coordinators (CCs) provide patients with coordinated services throughout the trajectory. Little is known about CCs' rehabilitation-focused tasks. This study's objective was to explore Norwegian CCs' experiences with cancer rehabilitation interventions in primary health care.

METHODS

Data were obtained via two focus group interviews with 12 participants, analysed using thematic analysis and discussed using Salutogenesis, a theory for health promotion.

RESULTS

The analysis revealed three themes: (a) "A missing link" to cancer rehabilitation in primary health care, (b) Aiming to put cancer rehabilitation "in the spotlight," (c) The need to build a system for rehabilitation service delivery.

CONCLUSION

CCs experience a lacking focus on and missing systems for cancer rehabilitation in primary health care. CCs aim to improve local practices by advocating patients' needs and educating professionals. CCs must be supported via education and training in system-level work, an increased policy focus and resources for cancer rehabilitation. More research is required into how CCs may facilitate cancer rehabilitation in primary health care.

摘要

目的

在初级卫生保健中促进复杂的癌症康复干预措施变得越来越重要,以满足癌症幸存者的生物-心理-社会需求。然而,癌症康复的实施存在争议,服务利用不足。癌症协调员(CC)为患者提供整个病程中的协调服务。关于 CC 以康复为重点的任务知之甚少。本研究的目的是探讨挪威 CC 在初级卫生保健中实施癌症康复干预措施的经验。

方法

通过两次焦点小组访谈获得 12 名参与者的数据,使用主题分析进行分析,并使用健康促进理论 Salutogenesis 进行讨论。

结果

分析结果揭示了三个主题:(a)初级卫生保健中癌症康复的“缺失环节”,(b)旨在将癌症康复“置于聚光灯下”,(c)建立康复服务提供系统的必要性。

结论

CC 体验到初级卫生保健中对癌症康复的关注不足和系统缺失。CC 旨在通过倡导患者的需求和教育专业人员来改善当地的实践。CC 必须通过系统层面工作的教育和培训、增加政策关注以及癌症康复资源来获得支持。还需要更多的研究来探讨 CC 如何在初级卫生保健中促进癌症康复。

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