McGill University, Canada; Lady Davis Institute for Medical Research, Canada.
McGill University, Canada; Montreal Children's Hospital and McGill University Health Centre, Canada.
Health (London). 2018 Sep;22(5):451-468. doi: 10.1177/1363459317708822. Epub 2017 May 29.
Acute hospital units are a common location of death. Curative characteristics of the acute medical setting make it difficult to provide adequate palliative care; these characteristics include an orientation to life-prolonging treatment, an emphasis on routine or task-oriented care and a lack of priority on emotional engagement with patients. Indeed, research shows that dying patients in acute medical units often experience unmet needs at the end of life, including uncontrolled symptoms (e.g. pain, breathlessness), inadequate emotional support and poor communication. A focused ethnography was conducted on an acute medical ward in Canada to better understand how this curative/life-prolonging care environment shapes the care of dying patients. Fieldwork was conducted over a period of 10 months and included participant-observation and interviews with patients, family members and staff. On the acute medical ward, a 'logic of care' driven by discourses of limited resources and the demanding medical unit created a context of busyness. Staff experienced an overwhelming workload and felt compelled to create priorities, which reflected taken-for-granted values regarding the importance of curative/life-prolonging care over palliative care. This could be seen through the way staff prioritized life-prolonging practices and rationalized inconsistent and less attentive care for dying patients. These values influenced care of the dying through delaying a palliative approach to care, limiting palliative care to those with cancer and providing highly interventive end-of-life care. Awareness of these taken-for-granted values compels a reflective and critical approach to current practice and how to stimulate change.
急性医院病房是常见的死亡地点。急性医疗环境的治疗特点使其难以提供充分的姑息治疗;这些特点包括倾向于延长生命的治疗、强调常规或任务导向的护理以及缺乏对患者情感投入的重视。事实上,研究表明,急性医疗病房中的临终患者经常在生命末期面临未满足的需求,包括无法控制的症状(如疼痛、呼吸困难)、缺乏情感支持和沟通不畅。在加拿大的一家急性医疗病房进行了一项集中的民族志研究,以更好地了解这种治疗/延长生命的护理环境如何影响临终患者的护理。实地工作持续了 10 个月,包括对患者、家属和工作人员进行参与式观察和访谈。在急性医疗病房,受有限资源话语和医疗单位要求苛刻的“护理逻辑”创造了一个忙碌的环境。工作人员面临着繁重的工作量,不得不确定优先事项,这反映了对治疗/延长生命护理的重要性优先于姑息治疗的既定价值观。这可以通过工作人员优先考虑延长生命的做法以及为临终患者提供不一致和不那么关注的护理来合理化的方式看出。这些价值观通过延迟姑息治疗方法、将姑息治疗仅限于癌症患者以及提供高度干预性的临终关怀来影响临终患者的护理。意识到这些既定的价值观迫使我们对当前的实践以及如何激发变革进行反思和批判性的思考。