努力保持个性——描述痴呆症患者在养老院的饮食体验
Struggling to maintain individuality - Describing the experience of food in nursing homes for people with dementia.
作者信息
Milte Rachel, Shulver Wendy, Killington Maggie, Bradley Clare, Miller Michelle, Crotty Maria
机构信息
Rehabilitation, Aged and Extended Care, Flinders University, Adelaide, Australia; NHMRC Cognitive Decline Partnership Centre, Sydney, Australia.
Rehabilitation, Aged and Extended Care, Flinders University, Adelaide, Australia.
出版信息
Arch Gerontol Geriatr. 2017 Sep;72:52-58. doi: 10.1016/j.archger.2017.05.002. Epub 2017 May 17.
PURPOSE OF THE STUDY
To describe the food and dining experience of people with cognitive impairment and their family members in nursing homes.
DESIGN AND METHODS
Interviews and focus groups with people with cognitive impairment and their family members (n=19). Thematic analysis was undertaken using NVivo10 data analysis software package to determine key themes.
RESULTS
The main themes identified tracked a journey for people with cognitive impairment in nursing homes, where they initially sought to have their individual needs and preferences recognised and heard, expressed frustration as they perceived growing barriers to receiving dietary care which met their preferences, and ultimately described a deterioration of the amount of control and choice available to the individual with loss of self-feeding ability and dysphagia.
IMPLICATIONS
Further consideration of how to incorporate individualised dietary care is needed to fully implement person-centred care and support the quality of life of those receiving nursing home care.
研究目的
描述认知障碍患者及其家庭成员在养老院的饮食及用餐体验。
设计与方法
对认知障碍患者及其家庭成员（n = 19）进行访谈和焦点小组讨论。使用NVivo10数据分析软件包进行主题分析以确定关键主题。
结果
确定的主要主题描绘了认知障碍患者在养老院的一段历程，他们最初寻求让自己的个人需求和偏好得到认可和倾听，随着他们察觉到在接受符合其偏好的饮食护理方面障碍越来越多而表达了沮丧之情，最终描述了随着自我进食能力丧失和吞咽困难，个人可获得的控制权和选择权有所恶化。
启示
需要进一步考虑如何纳入个性化饮食护理，以全面实施以人为本的护理并支持接受养老院护理者的生活质量。
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