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借助在线临床医生支持管理创伤性脑损伤后学龄前儿童的挑战性行为:一项试点研究方案

Managing challenging behaviour in preschool children post-traumatic brain injury with online clinician support: protocol for a pilot study.

作者信息

Taylor Kaitlyn, Catroppa Cathy, Godfrey Celia, McKinlay Audrey, Ponsford Jennie, Matthews Jan, Anderson Vicki

机构信息

Child Neuropsychology, Murdoch Childrens Research Institute, 50 Flemington Rd, Parkville, Victoria 3052 Australia.

Psychological Sciences, Monash University, Melbourne, Australia.

出版信息

Pilot Feasibility Stud. 2017 May 31;3:30. doi: 10.1186/s40814-017-0140-0. eCollection 2017.

Abstract

BACKGROUND

Traumatic brain injury (TBI) in children is associated with a range of poor long-term outcomes, including behavioural disturbances. Parents can experience high levels of stress and injury-related burden, and evidence suggests that distressed parents are less likely to adopt positive parenting styles to manage their child's behaviour. The 'Signposts for Building Better Behaviour' program is a parenting programme that was originally developed to assist parents of children with an intellectual disability in managing their child's behaviour. More recently, it has been adapted to include a TBI module, to assist parents in managing post-TBI behaviour. However, geographical and financial barriers remain, preventing many parents from accessing the programme in the standard face-to-face modality. This project aims to investigate the feasibility and acceptability of the programme when delivered with clinician support via videoconferencing.

METHODS/DESIGN: The sample for this feasibility study will be recruited from the Royal Children's Hospital, Melbourne, and the Victorian Paediatric Rehabilitation Service. Participants will be the parents of a child who sustained a TBI between the ages of 2.0 and 6.11, within the previous 2 years. The parents of 15 children will complete the programme, with clinician support via videoconferencing, while the parents of a further 15 children will form a treatment as usual wait-list control group. Parents complete questionnaires assessing their child's behaviour, as well as assessing their own mental health, sense of parenting competency, disciplinary style, and family functioning. These will be completed upon enrolment in the study regarding their child's pre-injury behaviour and then again pre-intervention, immediately post-intervention, and 4 months post-intervention. Parents who complete the intervention will also complete questionnaires assessing their satisfaction with the programme and its delivery. Information will be collected on the feasibility, clinical practicality, and acceptability of the programme when delivered through this medium.

DISCUSSION

This study is the first to investigate the feasibility of delivering post-child TBI behavioural intervention via videoconferencing in Australia. Preliminary findings from this study may support the development of a larger randomised controlled trial. It is hoped that programme delivery through this medium would facilitate better access to the programme, enabling improved long-term outcomes for families.

TRIAL REGISTRATION

ANZCTR, ACTRN12616001574437.

摘要

背景

儿童创伤性脑损伤(TBI)与一系列不良的长期后果相关,包括行为障碍。家长可能会承受高水平的压力和与损伤相关的负担,而且有证据表明,处于苦恼状态的家长不太可能采用积极的育儿方式来管理孩子的行为。“构建良好行为的路标”项目是一项育儿项目,最初是为帮助智障儿童的家长管理孩子的行为而开发的。最近,该项目进行了调整,纳入了一个TBI模块,以帮助家长管理创伤性脑损伤后的行为。然而,地理和经济障碍依然存在,阻碍了许多家长以标准的面对面方式参与该项目。本项目旨在调查通过视频会议在临床医生支持下开展该项目的可行性和可接受性。

方法/设计:本可行性研究的样本将从墨尔本皇家儿童医院和维多利亚州儿科康复服务中心招募。参与者将是在过去2年内其子女在2.0至6.11岁之间遭受创伤性脑损伤的家长。15名儿童的家长将在临床医生通过视频会议提供支持的情况下完成该项目,另外15名儿童的家长将组成一个常规治疗等待名单对照组。家长们要完成问卷,评估孩子的行为,以及评估自己的心理健康、育儿能力感、管教方式和家庭功能。这些问卷将在研究登记时就孩子受伤前的行为进行填写,然后在干预前、干预后立即以及干预后4个月再次填写。完成干预的家长还将完成问卷,评估他们对该项目及其实施方式的满意度。将收集有关通过这种方式开展该项目的可行性、临床实用性和可接受性的信息。

讨论

本研究是澳大利亚首个调查通过视频会议开展儿童创伤性脑损伤后行为干预的可行性的研究。本研究的初步结果可能支持开展一项更大规模的随机对照试验。希望通过这种方式开展该项目将有助于更好地获得该项目,为家庭带来更好的长期结果。

试验注册

澳大利亚和新西兰临床试验注册中心,ACTRN126

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/494c/5452385/f2858878d39d/40814_2017_140_Fig1_HTML.jpg

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