1 National Spinal Injuries Centre, Stoke Mandeville Hospital, Aylesbury, UK.
2 Oxford Major Trauma Centre, John Radcliffe Hospital, Oxford, UK.
Clin Rehabil. 2017 Dec;31(12):1646-1652. doi: 10.1177/0269215517712044. Epub 2017 Jun 5.
To pilot a method for routine outcome data collection one year after admission to a major trauma centre, to determine current outcomes, and to identify possible methodological improvements.
A postal questionnaire audit.
A major trauma centre in the United Kingdom.
In total, 355 patients known to be alive 12 months after admission with major trauma (Injury Severity Score (ISS) of 9 or more).
All patients received standard trauma and rehabilitation services available to them.
The main measures used are as follows: ISS; EuroQol, five dimensions five levels (EQ-5D-5L); single questions about accommodation, mobility, and self-care; demographic and injury data collected from hospital records; and outcome data by postal questionnaire.
In total, 429 patients were registered over six months: at one year, 64 had died and 10 had no UK address. In total, 355 questionnaires were sent out: 179 (50%) were never returned, 154 (43%) were returned with complete data, 11 forms were incomplete, 7 patients were dead, and 4 were not at the address contacted. Of the 154 with complete data, 91 had new mobility problems and 54 had new problems with personal activities. Of the 68 previously employed, 19 were unemployed, 38 were fully employed in the same job, and 13 had altered jobs. There was no association between Injury Severity Score and any of the outcome scores.
A short simple questionnaire sent only once achieved a complete data set response rate of 43%. The outcome data are consistent with experience in other studies. Collection of data on specific functional outcomes might be most sensitive.
试点一种在主要创伤中心入院后一年常规采集结局数据的方法,以确定当前结局,并确定可能的方法学改进。
邮寄问卷调查审核。
英国一家主要创伤中心。
共 355 例已知在创伤后 12 个月存活且创伤严重度评分(ISS)≥9 分的严重创伤患者。
所有患者均接受标准创伤和康复服务。
主要措施如下:ISS;欧洲五维健康量表(EQ-5D-5L);关于住宿、活动能力和自理能力的单项问题;从医院记录中收集人口统计学和损伤数据;以及通过邮寄问卷获得结局数据。
共登记 6 个月内的 429 例患者:1 年后,64 例死亡,10 例患者没有英国地址。共寄出 355 份问卷:179 份(50%)从未返回,154 份(43%)返回时有完整数据,11 份表格不完整,7 例患者死亡,4 例患者未联系到所联系的地址。在 154 份完整数据中,91 例有新的活动能力问题,54 例有新的自理活动问题。在 68 例曾有工作的患者中,19 例失业,38 例在同一工作中完全就业,13 例改变了工作。损伤严重度评分与任何结局评分均无相关性。
仅发送一次的简短简单问卷获得了 43%的完整数据集应答率。结局数据与其他研究中的经验一致。特定功能结局数据的采集可能最敏感。