Mills Rachel, Ensinger Megan, Callanan Nancy, Haga Susanne B
Duke University Department of Medicine, Center for Applied Genomics and Precision Medicine, 304 Research Drive, Box 90141, Durham, NC 27710, USA.
OhioHealth Genetic Counseling Program, Bing Cancer Center, 500 Thomas Ln Ste 2D Columbus, Columbus, OH 43214, USA.
J Pers Med. 2017 May 25;7(2):4. doi: 10.3390/jpm7020004.
As few patient-friendly resources about pharmacogenetics are currently available, we aimed to create and assess a patient educational video on pharmacogenetic testing. A primary literature and resources review was conducted to inform the content and the format of the video. The educational video was then created using a commercially available animation program and pilot tested in focus groups of the general public and by an online survey of pharmacists. Emerging themes from the focus groups and survey indicate a desire for appropriate risk contextualization and specific examples when pharmacogenetic testing may be beneficial. Focus group participants also expressed a preference for a video with live action, and more text to reinforce concepts. Pharmacists generally felt that the video was understandable for patients and relevant for decision-making regarding testing. Using this initial feedback and the identification of important concepts to include in pharmacogenetics educational tools, we plan to revise the video, perform additional evaluations, and publish the video for public use in the future.
由于目前几乎没有适合患者的药物遗传学资源,我们旨在制作并评估一个关于药物遗传学检测的患者教育视频。我们进行了一次主要文献和资源回顾,以为视频的内容和形式提供信息。然后,使用一个商业动画程序制作了教育视频,并在普通公众焦点小组中进行了试点测试,并通过对药剂师的在线调查进行了测试。焦点小组和调查中出现的新主题表明,当药物遗传学检测可能有益时,人们希望有适当的风险背景和具体例子。焦点小组参与者还表示更喜欢有真人表演的视频,以及更多强化概念的文字。药剂师普遍认为该视频患者可以理解,并且与检测决策相关。利用这些初步反馈以及确定药物遗传学教育工具中应包含的重要概念,我们计划对视频进行修订,进行更多评估,并在未来发布该视频以供公众使用。