Department of Medical Informatics, Academic Medical Center, Room J1B-113.2, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands.
Support Care Cancer. 2013 Apr;21(4):919-26. doi: 10.1007/s00520-012-1604-7. Epub 2012 Sep 25.
Childhood cancer survivors (CCS) are in need of specialized information about late effects of treatment. In the current study, we assessed the perceived usability and satisfaction with the content of a national website with information on late effects and analyzed possible determinants related to website usability and content satisfaction.
CCS and their parents were contacted through our local follow-up program and via online media to complete an online questionnaire regarding their baseline characteristics, medical decision style, and the usability and content of the website. Usability was evaluated using the System Usability Scale (SUS), a validated questionnaire resulting in a score from 0 to 100. For the content rating, we constructed a six-item scale resulting in a score from 1 to 5 (Cronbach's α, 0.83). Comments were analyzed qualitatively.
Fifty-five survivors and forty-three parents of survivors completed the questionnaire. Median age of respondents was 41 years (range, 17-58). Respondents rated the website's usability with a mean SUS score of 72.5 (95 % CI, 69.2-74.9). The mean content rating was 3.7 (95 % CI, 3.5-3.8). No determinants were significantly related to the perceived usability or content satisfaction in multivariate analyses. Qualitative analysis revealed respondents' preference for more detailed and even scientific information on late effects.
Respondents were satisfied with the usability and the contents of a website that targeted at their information needs. As knowledge about late effects is still limited among survivors, a website can be a valuable resource to improve their knowledge, promote healthy behavior, and in the end, improve their quality of life.
儿童癌症幸存者（CCS）需要专门的治疗后影响信息。本研究评估了对具有治疗后影响信息的国家网站内容的感知可用性和满意度，并分析了与网站可用性和内容满意度相关的可能决定因素。
通过我们的本地随访计划和在线媒体联系 CCS 及其父母，以完成有关其基线特征、医疗决策风格以及网站可用性和内容的在线问卷。使用经过验证的系统可用性量表（SUS）评估可用性，该量表的得分为 0 到 100。对于内容评分，我们构建了一个六项目量表，得分为 1 到 5（Cronbach's α，0.83）。对评论进行了定性分析。
55 名幸存者和 43 名幸存者的父母完成了问卷。受访者的中位年龄为 41 岁（范围，17-58 岁）。受访者对网站的可用性评分平均 SUS 得分为 72.5（95%置信区间，69.2-74.9）。平均内容评分 3.7（95%置信区间，3.5-3.8）。在多变量分析中，没有决定因素与感知可用性或内容满意度显著相关。定性分析显示，受访者更喜欢有关治疗后影响的更详细甚至科学信息。
受访者对满足其信息需求的网站的可用性和内容感到满意。由于幸存者对治疗后影响的了解仍然有限，因此网站可以成为提高他们知识、促进健康行为、最终提高他们生活质量的有价值资源。
