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是否告知多发性硬化症的诊断结果。

To tell or not to tell the diagnosis of multiple sclerosis.

作者信息

Elian M, Dean G

出版信息

Lancet. 1985 Jul 6;2(8445):27-8. doi: 10.1016/s0140-6736(85)90067-4.

DOI:10.1016/s0140-6736(85)90067-4
PMID:2861463
Abstract

167 patients disabled by multiple sclerosis were interviewed to ascertain their views about being told the name of the disease causing their disability. 30 were ignorant of the nature of their disease. 83% favoured knowing the diagnosis, 13% were indifferent, and less than 4% preferred not to know the diagnosis. Almost a quarter of the patients had discovered the diagnosis for themselves. All the respondents thought that the consultant was the person who should convey the diagnosis of multiple sclerosis.

摘要

对167名因多发性硬化症而致残的患者进行了访谈,以了解他们对于被告知导致其残疾的疾病名称的看法。30人对自己疾病的性质一无所知。83%的人赞成知晓诊断结果,13%的人无动于衷,不到4%的人宁愿不知道诊断结果。近四分之一的患者是自己发现诊断结果的。所有受访者都认为,应该由专科医生告知多发性硬化症的诊断结果。

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1
To tell or not to tell the diagnosis of multiple sclerosis.是否告知多发性硬化症的诊断结果。
Lancet. 1985 Jul 6;2(8445):27-8. doi: 10.1016/s0140-6736(85)90067-4.
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Suspicion of multiple sclerosis. To tell or not to tell?疑似多发性硬化症。告知还是不告知?
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Telling your patient he/she has multiple sclerosis.告知你的患者他/她患有多发性硬化症。
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[When and how should the diagnosis of multiple sclerosis be told to the patient--ethical dilemmas].[何时以及如何向患者告知多发性硬化症的诊断——伦理困境]
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What to tell patients with their first attack of multiple sclerosis.首次发作多发性硬化症该告知患者什么。
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引用本文的文献

1
Caught in a no-win situation: discussions about CCSVI between persons with multiple sclerosis and their neurologists - a qualitative study.陷入两难境地:多发性硬化症患者与其神经科医生关于慢性脑脊髓静脉血管病变(CCSVI)的讨论——一项定性研究
BMC Neurol. 2017 Sep 7;17(1):176. doi: 10.1186/s12883-017-0954-7.
2
The Communication of Multiple Sclerosis Diagnosis: The Patients' Perspective.多发性硬化症诊断的告知:患者视角
Mult Scler Int. 2015;2015:353828. doi: 10.1155/2015/353828. Epub 2015 Dec 15.
3
Disclosing the diagnosis of multiple sclerosis: the Profile Project.
披露多发性硬化症的诊断:概况项目。
J Neurol. 2012 Dec;259(12):2605-10. doi: 10.1007/s00415-012-6548-9. Epub 2012 May 26.
4
Disclosing the diagnosis of multiple sclerosis.披露多发性硬化症的诊断结果。
J Neurol. 2005 Nov;252(11):1307-9. doi: 10.1007/s00415-005-0969-7. Epub 2005 Nov 28.
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Multiple sclerosis: diagnosis and the management of acute relapses.多发性硬化症:诊断与急性复发的管理
Postgrad Med J. 2005 May;81(955):302-8. doi: 10.1136/pgmj.2004.029413.
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What do people with MS want and expect from health-care services?患有多发性硬化症的人对医疗服务有哪些需求和期望?
Health Expect. 2001 Mar;4(1):29-37. doi: 10.1046/j.1369-6513.2001.00111.x.
7
Diagnosis in chronic illness: disabling or enabling--the case of chronic fatigue syndrome.慢性病的诊断:致残还是赋能——以慢性疲劳综合征为例
J R Soc Med. 1995 Jun;88(6):325-9.