Elian M, Dean G
Lancet. 1985 Jul 6;2(8445):27-8. doi: 10.1016/s0140-6736(85)90067-4.
167 patients disabled by multiple sclerosis were interviewed to ascertain their views about being told the name of the disease causing their disability. 30 were ignorant of the nature of their disease. 83% favoured knowing the diagnosis, 13% were indifferent, and less than 4% preferred not to know the diagnosis. Almost a quarter of the patients had discovered the diagnosis for themselves. All the respondents thought that the consultant was the person who should convey the diagnosis of multiple sclerosis.
对167名因多发性硬化症而致残的患者进行了访谈,以了解他们对于被告知导致其残疾的疾病名称的看法。30人对自己疾病的性质一无所知。83%的人赞成知晓诊断结果,13%的人无动于衷,不到4%的人宁愿不知道诊断结果。近四分之一的患者是自己发现诊断结果的。所有受访者都认为,应该由专科医生告知多发性硬化症的诊断结果。