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青少年和青年癌症幸存者的生活方式信息和干预偏好:一项定性研究。

The Lifestyle Information and Intervention Preferences of Teenage and Young Adult Cancer Survivors: A Qualitative Study.

机构信息

Author Affiliations: Department of Behavioural Science and Health, University College London (Ms Pugh, Ms Haddrell, Dr Fisher, and Dr Beeken); Children and Young People's Cancer Service, National Health Services Foundation Trust, University College Hospital (Dr Hough); CLIC Sargent (Ms Gravestock), London, United Kingdom.

出版信息

Cancer Nurs. 2018 Sep/Oct;41(5):389-398. doi: 10.1097/NCC.0000000000000508.

Abstract

BACKGROUND

Little is currently known about how best to promote healthy lifestyle choices among teenage and young adult (TYA) cancer survivors. Such data gathered from a patient-centered perspective are instrumental for the development of health behavior change interventions for young people with cancer.

OBJECTIVE

This study aimed to explore the lifestyle information needs of TYA cancer survivors and their preferences regarding lifestyle information and intervention delivery. Lifestyle behaviors of interest were physical activity, diet, smoking, alcohol consumption, and sun safety.

METHODS

A total of 13 TYA cancer survivors (mean age, 22.9 years) participated in 10 individual interviews and 1 focus group (n = 3). Each interview and focus group followed the same semistructured interview guide, which was designed to explore young peoples' motivation behind leading a healthy lifestyle, their past experience of searching for lifestyle information, and their preferences relating to lifestyle information delivery.

RESULTS

Three core themes emerged: cancer as a catalyst to lifestyle behavior change, factors influencing health behavior change, and health behavior information preferences. Social support emerged as facilitator of both health behavior change and self-efficacy.

CONCLUSION

Young people with cancer want age-appropriate lifestyle information on a range of topics delivered in multiple formats at various time points.

IMPLICATIONS FOR PRACTICE

Health professionals working with TYA cancer survivors should address young peoples' lifestyle information needs throughout the cancer care pathway and support young people to foster the confidence to make, and sustain, positive lifestyle behavior changes.

摘要

背景

目前对于如何最好地促进青少年和年轻成年癌症幸存者选择健康的生活方式知之甚少。从以患者为中心的角度收集到的此类数据对于为癌症青少年制定健康行为改变干预措施至关重要。

目的

本研究旨在探讨青少年和年轻成年癌症幸存者的生活方式信息需求以及他们对生活方式信息和干预措施传递的偏好。感兴趣的生活方式行为包括身体活动、饮食、吸烟、饮酒和防晒。

方法

共有 13 名青少年和年轻成年癌症幸存者(平均年龄 22.9 岁)参加了 10 次个人访谈和 1 次焦点小组(n=3)。每次访谈和焦点小组都遵循相同的半结构化访谈指南,旨在探讨年轻人过健康生活方式的动机、他们过去寻找生活方式信息的经验,以及他们对生活方式信息传递的偏好。

结果

出现了三个核心主题:癌症是生活方式行为改变的催化剂、影响健康行为改变的因素以及健康行为信息偏好。社会支持是促进健康行为改变和自我效能的因素。

结论

癌症青少年希望获得各种主题的适合年龄的生活方式信息,并以多种格式在不同时间点提供。

实践意义

与青少年和年轻成年癌症幸存者一起工作的健康专业人员应在整个癌症护理过程中满足年轻人的生活方式信息需求,并支持年轻人培养做出并维持积极生活方式改变的信心。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5416/6259678/22dbcab087ef/ncc-41-389-g002.jpg

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