Austin Lynn, Ewing Gail, Grande Gunn
Centre for Primary Care, Faculty of Biological, Medical and Health Sciences, The University of Manchester, Manchester, United Kingdom.
Centre for Family Research, University of Cambridge, Cambridge, United Kingdom.
PLoS One. 2017 Jun 16;12(6):e0179287. doi: 10.1371/journal.pone.0179287. eCollection 2017.
Informal caregivers play a pivotal role in supporting patients approaching the end of life. The Carer Support Needs Assessment Tool (CSNAT) is designed to facilitate person-centred assessment and support through a process that is practitioner-facilitated, but carer-led. This study explored practitioners' experiences of implementing the CSNAT in palliative homecare.
We conducted qualitative interviews/focus groups with 20 practitioners in one UK hospice homecare service (18 nurses, two healthcare assistants) before and after the implementation of the CSNAT. Thematic analysis of the data was underpinned by framework analysis.
Not all practitioners appreciated that using the CSNAT required a shift towards a more person-centred approach to assessment; consequently they tagged the tool onto their existing practitioner-led practice. Practitioners who did use the CSNAT as intended were able to act as role models and support their colleagues in making this transition. Practitioners' comments revealed a number of contradictions: 1) Most felt that they 'already do' identify carer support needs, but feared using the CSNAT could increase their workload; 2) some worried about introducing the CSNAT 'too soon', but recognised that it was 'too late' once patients were close to the end of life; 3) whilst practitioners stated 'they were there for the family as well as the patient', care provision was overtly centred around patients.
This study provides vital insights into barriers and facilitators to implementing the CSNAT as part of a person-centred approach to assessment. The findings identified the training and support required to help practitioners make this transition to this new way of working.
非正式照护者在支持临终患者方面发挥着关键作用。照护者支持需求评估工具(CSNAT)旨在通过由从业者推动但由照护者主导的过程,促进以个人为中心的评估和支持。本研究探讨了从业者在姑息性家庭护理中实施CSNAT的经验。
在实施CSNAT之前和之后,我们对英国一家临终关怀家庭护理服务机构的20名从业者(18名护士、2名医疗保健助理)进行了定性访谈/焦点小组讨论。数据的主题分析以框架分析为基础。
并非所有从业者都认识到使用CSNAT需要转向更以个人为中心的评估方法;因此,他们将该工具附加到现有的由从业者主导的实践中。按预期使用CSNAT的从业者能够成为榜样,并支持同事进行这种转变。从业者的评论揭示了一些矛盾之处:1)大多数人认为他们“已经在做”识别照护者支持需求的工作,但担心使用CSNAT会增加他们的工作量;2)一些人担心过早引入CSNAT,但认识到一旦患者接近生命末期就“为时已晚”;3)虽然从业者表示“他们既为患者也为家属提供服务”,但护理服务明显以患者为中心。
本研究为将CSNAT作为以个人为中心的评估方法的一部分实施过程中的障碍和促进因素提供了重要见解。研究结果确定了帮助从业者向这种新工作方式转变所需的培训和支持。