Berl Madison M, Goodkin Howard P, Kroner Barbara L, Bumbut Adrian, Lapham Gardiner, Gaillard William Davis
Center for Neuroscience, Children's National Health System, Washington, DC; Departments of Psychiatry and Behavioral Sciences and Pediatrics, George Washington University, Washington, DC.
Departments of Neurology and Pediatrics, University of Virginia Health System, Charlottesville, VA.
J Pediatr. 2017 Sep;188:291-293.e3. doi: 10.1016/j.jpeds.2017.05.036. Epub 2017 Jun 16.
A survey of 146 pediatric care providers (PCPs) revealed that 75.3% were unaware that children with epilepsy were at risk of death, specifically from sudden unexpected (or unexplained) death in epilepsy (SUDEP). PCPs assume that the treating neurologist discusses these risks. Increasing PCPs' knowledge of SUDEP will help address the care gap related to informing families about SUDEP.
一项针对146名儿科护理提供者（PCP）的调查显示，75.3%的人不知道癫痫患儿有死亡风险，尤其是癫痫性猝死（SUDEP），即突然意外（或不明原因）的癫痫死亡。儿科护理提供者认为治疗神经科医生会讨论这些风险。提高儿科护理提供者对癫痫性猝死的认识将有助于弥补在告知家庭有关癫痫性猝死方面的护理差距。
