School of Health Science, City, University of London, Northampton Square, London EC1V 0HB, UK.
Lane Fox Clinical Respiratory Physiology Research Unit, Guy's and St. Thomas' NHS Foundation Trust, Westminster Bridge Road, Lambeth, London SE1 7EH, UK.
Nurs Crit Care. 2018 Nov;23(6):316-323. doi: 10.1111/nicc.12305. Epub 2017 Jun 22.
With improved survival rates in critical care, increasing focus is being placed on survivorship and how best to support patients in returning to their former activity. Little is known about what support patients themselves view as important, and this has implications for the efficacy and acceptability of services provided.
To describe former critical care patients' perspectives on the support needed to optimize recovery.
This is a qualitative exploratory study of the experiences of support received by critical care survivors.
Semi-structured interviews were undertaken with 12 critical care survivors recruited from a charity and a patient and public involvement group. The interviews were analysed using thematic analysis to describe patterns in the participants' experiences.
Four themes of support were described: effective management of transfer anxiety, tailored information provision, timely access to services and a supportive social network.
Survivors of critical care should be equipped with information about their critical care stay, ongoing health issues and recovery and should be provided with holistic care at home. Critical care follow up was an effective way of meeting many of these needs, but this needs to be flexible to be useful to attendees. Peer support groups (face-to-face and online) provided information, reassurance, a social network and an avenue for those who had longer-lasting problems than current services provide for.
Whilst there are commonalities in the problems faced by critical care survivors, recovery is highly individualized, and current support services do not have sufficient flexibility to cater for this. This study shows that many survivors experience after-effects of critical care that outlast the support they are given. These longer-term survivors are often excluded from research studies because of fears of recall bias, resulting in poor understanding of their experiences.
随着重症监护存活率的提高，人们越来越关注生存问题以及如何最好地支持患者恢复到以前的活动状态。目前对于患者自身认为重要的支持措施知之甚少，这对所提供服务的疗效和可接受性有影响。
描述重症监护幸存者对优化康复所需支持的看法。
这是一项对重症监护幸存者所获得支持的体验进行定性探索性研究。
从慈善机构和患者与公众参与小组中招募了 12 名重症监护幸存者进行半结构化访谈。使用主题分析对访谈进行分析，以描述参与者体验中的模式。
描述了四种支持主题：有效管理转院焦虑、量身定制的信息提供、及时获得服务和支持性社交网络。
重症监护幸存者应配备有关其重症监护住院、持续健康问题和康复的信息，并应在家中获得全面的护理。重症监护随访是满足这些需求的有效方法，但这需要具有灵活性，以便对参与者有用。同行支持小组（面对面和在线）提供了信息、安慰、社交网络，以及为那些存在比当前服务更持久问题的人提供了途径。
尽管重症监护幸存者面临的问题有共同之处，但康复是高度个体化的，当前的支持服务缺乏足够的灵活性来满足这一需求。本研究表明，许多幸存者经历了重症监护的后遗症，这些后遗症持续时间超过了他们所获得的支持。这些长期幸存者经常因为对回忆偏差的担忧而被排除在研究之外，这导致对他们的经历缺乏了解。
