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先天性心脏病患儿母亲的反应:生活质量、焦虑与抑郁、父母态度、家庭功能

Responses of mothers of children with CHD: quality of life, anxiety and depression, parental attitudes, family functionality.

作者信息

Alkan Fatos, Sertcelik Tamay, Yalın Sapmaz Sermin, Eser Erhan, Coskun Senol

机构信息

1Department of Pediatrics,Division of Pediatrics Cardiology,School of Medicine,Celal Bayar University,Manisa,Türkiye.

2Department of Pediatrics,School of Medicine,Celal Bayar University,Manisa,Türkiye.

出版信息

Cardiol Young. 2017 Nov;27(9):1748-1754. doi: 10.1017/S1047951117001184. Epub 2017 Jun 27.

Abstract

UNLABELLED

Introduction The aim of this study was to evaluate the anxiety and depression status, family functions, parenting attitudes, and quality of life in the mothers of children with CHD.

METHOD

The study enrolled 120 mothers: 40 of children with cyanotic CHD, 40 of children with non-cyanotic CHD, and 40 of healthy controls. Short Form-36 for quality of life, Hospital Anxiety-Depression Scale for anxiety and depression, Family Assessment Device for the detection of problems affecting family functions, and Parental Attitude Research Instrument for measuring child-rearing attitudes were used in the study.

RESULTS

Statistically significant decreases were found in the general health standards of mothers of non-cyanotic children (p=0.035) and in the emotional and physical role difficulty of mothers of cyanotic children (p=0.006, p=0.010). When anxiety and depression levels of the parents were examined, the anxiety level of the cyanotic group was found to be significantly higher than that of the other groups (p=0.031). When family behaviours were assessed, there was a statistically significant decrease in role status in the families having a child with cyanotic CHD (p=0.035). In the Parental Attitude Research Instrument test, the husband and wife incompatibility sub-scale was found to be statistically significantly lower in the cyanotic CHD group (p=0.030).

CONCLUSION

When there is a diseased person in the family, the focus should not be solely on the problems of the patient but also on preventive methods to be implemented in order to protect the mental health of all family members.

摘要

未标注

引言 本研究旨在评估先天性心脏病(CHD)患儿母亲的焦虑和抑郁状况、家庭功能、育儿态度及生活质量。

方法

该研究招募了120名母亲:40名患有青紫型CHD患儿的母亲、40名患有非青紫型CHD患儿的母亲以及40名健康对照者。研究中使用了生活质量简表36、焦虑抑郁量表评估焦虑和抑郁、家庭评估工具检测影响家庭功能的问题以及父母态度研究工具测量育儿态度。

结果

非青紫型患儿母亲的总体健康标准(p = 0.035)以及青紫型患儿母亲在情感和身体角色方面的困难程度(p = 0.006,p = 0.010)在统计学上有显著下降。当检查父母的焦虑和抑郁水平时,发现青紫型组的焦虑水平显著高于其他组(p = 0.031)。在评估家庭行为时,有青紫型CHD患儿的家庭中角色地位在统计学上有显著下降(p = 0.035)。在父母态度研究工具测试中,发现青紫型CHD组的夫妻不相容子量表在统计学上显著更低(p = 0.030)。

结论

当家庭中有患病者时,关注重点不应仅放在患者的问题上,还应放在为保护所有家庭成员心理健康而实施的预防措施上。

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