Yorkston Kathryn, Baylor Carolyn, Britton Deanna
University of Washington, Seattle.
Portland State University, ORNorthwest Clinic for Voice and Swallowing, Oregon Health & Sciences University, Portland.
Am J Speech Lang Pathol. 2017 Jun 22;26(2S):561-568. doi: 10.1044/2017_AJSLP-16-0087.
In this project, we explore the experiences of people who report speech changes associated with Parkinson's disease as they describe taking part in everyday communication situations and report impressions related to speech treatment.
Twenty-four community-dwelling adults with Parkinson's disease took part in face-to-face, semistructured interviews. Qualitative research methods were used to code and develop themes related to the interviews.
Two major themes emerged. The first, called "speaking," included several subthemes: thinking about speaking, weighing value versus effort, feelings associated with speaking, the environmental context of speaking, and the impact of Parkinson's disease on speaking. The second theme involved "treatment experiences" and included subthemes: choosing not to have treatment, the clinician, drills and exercise, and suggestions for change.
From the perspective of participants with Parkinson's disease, speaking is an activity requiring both physical and cognitive effort that takes place in a social context. Although many report positive experiences with speech treatment, some reported dissatisfaction with speech drills and exercises and a lack of focus on the social aspects of communication. Suggestions for improvement include increased focus on the cognitive demands of speaking and on the psychosocial aspects of communication.
在本项目中，我们探讨了那些报告与帕金森病相关的言语变化的人们在描述参与日常交流情境以及汇报与言语治疗相关的感受时的经历。
24名患有帕金森病的社区成年人参与了面对面的半结构化访谈。采用定性研究方法对访谈内容进行编码并提炼主题。
出现了两个主要主题。第一个主题为“言语表达”，包括几个子主题：思考言语表达、权衡价值与努力、与言语表达相关的感受、言语表达的环境背景以及帕金森病对言语表达的影响。第二个主题涉及“治疗体验”，包括子主题：选择不接受治疗、临床医生、训练与练习以及改进建议。
从帕金森病患者的角度来看，言语表达是一项在社交情境中需要身体和认知努力的活动。尽管许多人报告言语治疗有积极体验，但也有人对言语训练和练习不满意，且缺乏对交流社会层面的关注。改进建议包括更多地关注言语表达的认知需求以及交流的心理社会层面。
