Menzies R G, Parkin J M, Hey E N
Lancet. 1985 Nov 2;2(8462):993-5. doi: 10.1016/s0140-6736(85)90535-5.
The life expectation of babies with paralytic lumbar meningomyelocele not offered immediate surgery at birth appears to be influenced by the extent to which parents are involved in the child's early care. 8 of the 27 children offered family-centred care in one hospital in 1971-80 and not offered immediate surgery survived to school entry and none of these children has since died. All are chairbound and incontinent, but none is intellectually retarded and many are no more handicapped than the children offered immediate surgical treatment at birth. The choice before the family at birth does not have to be presented as an urgent and immediate choice between life and death.
对于出生时未立即接受手术的麻痹性腰骶部脊髓脊膜膨出患儿，其预期寿命似乎受父母参与孩子早期护理程度的影响。1971年至1980年期间，在一家医院接受以家庭为中心护理且未立即接受手术的27名儿童中，有8名存活至入学年龄，此后这些儿童均未死亡。他们都需要依靠轮椅行动且大小便失禁，但没有一个智力发育迟缓，而且许多儿童的残疾程度并不比出生时立即接受手术治疗的儿童严重。出生时家庭面临的选择不必被呈现为生死攸关的紧急选择。
