Patient and Community Engagement Research (PaCER) Program, O'Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada.
Community Rehabilitation and Disability Studies Program, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Health Expect. 2017 Dec;20(6):1428-1436. doi: 10.1111/hex.12591. Epub 2017 Jun 28.
A patient research internship (Patient and Community Engagement Research program-PaCER) was created to support a provincial commitment by Alberta Health Services' Strategic Clinical Networks to find new ways to engage patients in a new interdisciplinary organization to support evidence-informed improvements in clinical outcomes across the health system.
Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer-to-peer research.
Programme evaluation using Outcome Mapping and the grounded theory method.
Twenty-one patients with various chronic conditions completed one year of training in adapted qualitative research methods, including an internship where they designed and conducted five peer-to-peer inquiries into a range of health experiences.
Outcomes were continually monitored and evaluated using an Outcome Mapping framework, in combination with grounded theory analysis, based on data from focus groups, observation, documentation review and semi-structured interviews (21 patient researchers, 15 professional collaborators).
Key stakeholders indicated the increased capacity of patients to engage in health-care research and planning, and the introduction and acceptance of new, collaborative roles for patients in health research. The uptake of new patient roles in health-care planning began to impact attitudes and practices.
Patient researchers become "part of the team" through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations.
为了支持艾伯塔省卫生服务战略临床网络的一项省级承诺，即寻找新方法让患者参与一个新的跨学科组织，以支持整个卫生系统中基于证据的临床结果改善，创建了一个患者研究实习计划（患者和社区参与研究计划-PaCER）。
实施和测试一种新的研究方法和培训课程，通过同行研究来增强患者参与健康的能力。
使用成果映射和扎根理论方法进行方案评估。
21 名患有各种慢性疾病的患者完成了为期一年的适应性定性研究方法培训，包括实习，他们在实习中设计并进行了五项针对各种健康体验的同行调查。
使用成果映射框架，结合扎根理论分析，根据焦点小组、观察、文件审查和半结构化访谈（21 名患者研究人员，15 名专业合作者）的数据，持续监测和评估结果。
主要利益攸关方表示，患者参与医疗保健研究和规划的能力有所提高，以及在医疗研究中为患者引入和接受新的、协作角色。新的患者角色在医疗保健规划中的采用开始影响态度和实践。
患者研究人员通过文化和关系的变化成为“团队的一部分”，这些变化朝着两个方向同时发生：（i）增强患者与临床医生和决策者进行自信对话的能力，以及（ii）增加目标组织内接受患者参与的准备程度。
