Department of Psychology, University of Sheffield, Cathedral Court, 1 Vicar Lane, Floor F, Sheffield, S1 2LT, U.K.
Br J Dermatol. 2018 Jan;178(1):154-160. doi: 10.1111/bjd.15780. Epub 2017 Dec 5.
While rosacea is a chronic skin condition, it can often have a large psychosocial impact on the individual. There is therefore a need to understand the experience of living with rosacea from the patient perspective.
To examine the experience of living with rosacea and the experience of seeking and receiving treatment.
Nine participants took part in semistructured interviews, which were analysed using interpretative phenomenological analysis.
Three superordinate themes were identified within the data: 'self-consciousness', which focused on the fear of others assigning blame to participants for having caused symptoms; 'avoidance, concealment and hiding emotions', referring to the coping strategies participants employed in response to rosacea; and 'inconsistencies in general practitioner treatment and guidance', which focused on the need for medical professionals to assess the psychosocial well-being of patients with rosacea.
Rosacea can have a negative impact on the daily life of people with the condition, contributing to lowered self-esteem, embarrassment and feelings of shame. Engaging in emotion-focused and behavioural/avoidant-focused coping strategies increased participants' confidence and reduced their avoidance of social situations. However, such strategies might still serve to maintain underlying unhelpful cognitive processes. Consequently, it is important for medical professionals to assess for the presence of cognitive factors that might contribute to maintaining distress in patients with rosacea, and where unhelpful thoughts or beliefs are reported, patients may need to be referred for psychological support.
虽然酒渣鼻是一种慢性皮肤疾病,但它通常会对个体的心理社会产生重大影响。因此,需要从患者的角度来理解患有酒渣鼻的体验。
探讨患有酒渣鼻的体验以及寻求和接受治疗的体验。
9 名参与者参加了半结构化访谈,采用解释性现象学分析对访谈内容进行分析。
数据中确定了三个上位主题:“自我意识”,主要关注他人将症状归咎于参与者的恐惧;“回避、隐瞒和隐藏情绪”,指的是参与者应对酒渣鼻时采用的应对策略;以及“全科医生治疗和指导的不一致”,重点是医疗专业人员需要评估酒渣鼻患者的心理社会健康状况。
酒渣鼻会对患者的日常生活产生负面影响,导致自尊心降低、尴尬和羞耻感。采用以情绪为中心和以行为/回避为中心的应对策略可以增强参与者的信心并减少他们对社交场合的回避。然而,这些策略可能仍然有助于维持潜在的无益认知过程。因此,医疗专业人员评估可能导致酒渣鼻患者痛苦持续的认知因素非常重要,如果报告了无益的想法或信念,患者可能需要转介接受心理支持。