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一项关于支持皮肤病患者心理健康和福祉的数字干预措施的混合方法系统评价。

A mixed methods systematic review of digital interventions to support the psychological health and well-being of people living with dermatological conditions.

作者信息

Hewitt Rachael M, Ploszajski Matthew, Purcell Catherine, Pattinson Rachael, Jones Bethan, Wren Georgina H, Hughes Olivia, Ridd Matthew J, Thompson Andrew R, Bundy Chris

机构信息

School of Healthcare Sciences, Cardiff University, Cardiff, United Kingdom.

Wales Centre for Evidence Based Care-A JBI Centre of Excellence, Cardiff, United Kingdom.

出版信息

Front Med (Lausanne). 2022 Nov 3;9:1024879. doi: 10.3389/fmed.2022.1024879. eCollection 2022.

Abstract

BACKGROUND

Dermatological conditions can have a substantial impact on psychological as well as physical health yet dedicated face-to-face psychological support for patients is lacking. Thus, individuals may require additional support to self-manage dermatological conditions effectively. Digital technology can contribute to long-term condition management, but knowledge of the effectiveness of digital interventions addressing psychological (cognitive, emotional, and behavioural) aspects of dermatological conditions is limited.

OBJECTIVES

To identify, determine the effectiveness, and explore people's views and experiences of digital interventions supporting the psychological health of people with dermatological conditions.

METHODS

A mixed methods systematic review informed by JBI methodology. The protocol was registered on PROSPERO. Eight electronic databases were searched for papers written between January 2002 and October 2021. Data screening and extraction were conducted in Covidence. The methodological quality of studies were scrutinised against JBI critical appraisal tools. Intervention characteristics were captured using the Template for Intervention Description and Replication checklist and guide. Data were synthesised using a convergent segregated approach. The results were reported in a narrative summary.

RESULTS

Twenty-three papers were identified from 4,883 references, including 15 randomised controlled trials. Nineteen interventions were condition-specific, 13 were delivered online, 16 involved an educational component, and 7 endorsed established, evidence-based therapeutic approaches. Improvements in knowledge, mood, quality of life, the therapeutic relationship, and reduced disease severity in the short to medium term, were reported, although there was substantial heterogeneity within the literature. Thirteen studies captured feedback from users, who considered various digital interventions as convenient and helpful for improving knowledge, emotion regulation, and personal control, but technical and individual barriers to use were reported. Use of established qualitative methodologies was limited and, in some cases, poorly reported.

CONCLUSION

Some web-based digital psychological interventions seem to be acceptable to people living with mainly psoriasis and eczema. Whilst some digital interventions benefitted cognitive and emotional factors, heterogeneity and inconsistencies in the literature meant definitive statements about their effectiveness could not be drawn. Interdisciplinary and patient-centred approaches to research are needed to develop and test quality digital interventions supporting the psychological health of adults living with common and rare dermatological conditions.

SYSTEMATIC REVIEW REGISTRATION

[https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=285435], identifier [CRD42021285435].

摘要

背景

皮肤病不仅会对身体健康产生重大影响,还会对心理健康造成影响,但目前缺乏为患者提供专门的面对面心理支持。因此,个人可能需要额外的支持来有效自我管理皮肤病。数字技术有助于长期疾病管理,但关于针对皮肤病心理(认知、情感和行为)方面的数字干预措施有效性的了解有限。

目的

识别、确定支持皮肤病患者心理健康的数字干预措施的有效性,并探索人们对这些措施的看法和体验。

方法

采用循证卫生保健国际协作网(JBI)方法进行的混合方法系统评价。该方案已在国际前瞻性系统评价注册库(PROSPERO)登记。检索了8个电子数据库,查找2002年1月至2021年10月期间撰写的论文。在Covidence中进行数据筛选和提取。根据JBI批判性评价工具对研究的方法学质量进行审查。使用干预描述与复制模板清单和指南来记录干预特征。采用收敛性分离法对数据进行综合分析。结果以叙述性总结的形式呈现。

结果

从4883篇参考文献中识别出23篇论文,包括15项随机对照试验。19种干预措施针对特定疾病,13种通过在线提供,16种涉及教育成分,7种采用既定的、基于证据的治疗方法。尽管文献中存在很大异质性,但报告显示在短期至中期,患者的知识、情绪、生活质量、治疗关系有所改善,疾病严重程度有所降低。13项研究收集了用户反馈,用户认为各种数字干预措施方便且有助于提高知识、情绪调节能力和个人控制能力,但也报告了技术和个人使用障碍。既定定性方法的使用有限,在某些情况下报告也不充分。

结论

一些基于网络的数字心理干预措施似乎为主患银屑病和湿疹的人群所接受。虽然一些数字干预措施对认知和情感因素有益,但文献中的异质性和不一致性意味着无法就其有效性得出明确结论。需要采用跨学科和以患者为中心的研究方法来开发和测试高质量的数字干预措施,以支持患有常见和罕见皮肤病的成年人的心理健康。

系统评价注册

[https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=285435],标识符[CRD42021285435]

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f6a6/9669071/2cc349f8beed/fmed-09-1024879-g001.jpg

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