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姑息治疗作为一个公共卫生问题:基于政策分析,了解多伦多无家可归者获得姑息治疗的差异。

Palliative care as a public health issue: understanding disparities in access to palliative care for the homeless population living in Toronto, based on a policy analysis.

作者信息

Henry B, Dosani N, Huynh L, Amirault N

机构信息

Sunnybrook Health Sciences Centre, Toronto.

North York General Hospital, Toronto.

出版信息

Curr Oncol. 2017 Jun;24(3):187-191. doi: 10.3747/co.24.3129. Epub 2017 Jun 27.

Abstract

Even in a developed country such as Canada, there are disparities in just access to adequate health care-and, more specifically, palliative care. That inequality is most notable in an underserved group such as the homeless population. Even the word "homeless" has become both a negative descriptor and a stereotype in our society. We posit that the provision of hospice palliative care is structured on several problematic assumptions: an expectation that patients will have an informal support network (family and friends), a stable and secure residence, a predictive terminal illness trajectory, and reasonable access to health care. Those assumptions create structural inequality within the system. Homeless individuals have considerable experience with death and dying, and qualitative research has shown them to hold the expectation that their death will be both sudden and violent. Here, we look at the current data concerning known disparities in access to good palliative care services experienced by the homeless population, based on a stakeholder analysis of the available literature. That information, coupled with the use of a public health ethics decision-making tool, such as the Good Decision Making in Real Time framework, is used to explore the common ethics challenges that can arise in public health interventions aimed at the provision of end-of-life care to homeless adults. A broad exploration of the system that underlies our care is critical to the proper and appropriate provision of care for homeless individuals.

摘要

即使在加拿大这样的发达国家,在获得足够的医疗保健服务方面,尤其是姑息治疗方面,也存在差异。这种不平等在无家可归者等服务不足的群体中最为明显。在我们的社会中,甚至“无家可归者”这个词都已成为一种负面描述和刻板印象。我们认为,临终关怀姑息治疗的提供基于几个有问题的假设:期望患者有一个非正式的支持网络(家人和朋友)、一个稳定安全的住所、可预测的晚期疾病轨迹以及合理的医疗保健服务获取途径。这些假设在系统内造成了结构性不平等。无家可归者对死亡有着丰富的经历,定性研究表明他们预期自己的死亡将既突然又暴力。在此,我们基于对现有文献的利益相关者分析,审视有关无家可归者在获得优质姑息治疗服务方面已知差异的当前数据。这些信息,再结合使用公共卫生伦理决策工具,如实时良好决策框架,用于探索在针对无家可归成年人提供临终关怀的公共卫生干预中可能出现的常见伦理挑战。对我们护理背后的系统进行广泛探索对于为无家可归者提供恰当和合适的护理至关重要。

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本文引用的文献

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Does end-of-life decision making matter? Perspectives of older homeless adults.临终决策重要吗?老年无家可归者的观点。
Am J Hosp Palliat Care. 2014 Mar;31(2):183-8. doi: 10.1177/1049909113482176. Epub 2013 Mar 21.
6
Bringing palliative care to the homeless.为无家可归者提供姑息治疗。
CMAJ. 2011 Apr 5;183(6):E317-8. doi: 10.1503/cmaj.109-3756. Epub 2011 Mar 7.
8
Advancing palliative care as a human right.推动姑息治疗成为一项人权。
J Pain Symptom Manage. 2009 Nov;38(5):767-74. doi: 10.1016/j.jpainsymman.2009.03.003. Epub 2009 Sep 24.

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