D'Souza Violet, Serrao Maiziel, Watson Erin, Blouin Elizabeth, Zeitouni Anthony, Allison Paul J
Faculty of Dentistry, McGill University, 2001 Avenue McGill College, Montreal, Quebec, H3A 2B2, Canada.
Department of Otolaryngology - Head and Neck Surgery, McGill University Hospital Center, 687 Pine Ave, West Suite E4-41, Montreal, Quebec, H3A 1A1, Canada.
Support Care Cancer. 2018 Jan;26(1):91-98. doi: 10.1007/s00520-017-3818-1. Epub 2017 Jul 11.
We aimed to understand how information was delivered to head and neck (H&N) cancer patients and describe the perceptions of the H&N patients concerning information delivery.
This qualitative investigation was a part of our larger quantitative study that was conducted with H&N cancer patients at two academic hospitals in Montreal. After obtaining the ethical approval, a purposeful sample of participants was recruited from the main study until the content of the information gathered reached saturation. Data were collected by observing the information delivery and interviewing the study participants and Nurse Pivots. All observations and interviews were audiotaped. Data were transcribed verbatim; transcripts were developed, audited, and subjected to a thematic analysis.
Eleven H&N patients participated in the study. We found that the doctors were the main source of information at both hospitals; one hospital delivered information systematically to every patient using a multimedia-based information disseminating tool while the second hospital delivered information verbally in an ad hoc manner. Those who received information using the multimedia tool understood what was said to them and were better prepared for the next step, while those who received information verbally did not retain much, were confused, and expressed dissatisfaction.
Although the doctors were the main source of information, patients experience difficulties in understanding what was said to them. Comprehensive information together with audiovisuals, when provided to H&N cancer patients based on their needs, seems to improve their understanding of their cancer and prepare them for their treatment.
我们旨在了解信息是如何传递给头颈癌患者的，并描述头颈癌患者对信息传递的看法。
这项定性研究是我们在蒙特利尔的两家学术医院针对头颈癌患者开展的一项更大规模定量研究的一部分。获得伦理批准后，从主要研究中招募有目的的参与者样本，直到收集到的信息内容达到饱和。通过观察信息传递过程以及对研究参与者和护士枢纽进行访谈来收集数据。所有观察和访谈均进行录音。数据逐字转录；转录本经过整理、审核并进行主题分析。
11名头颈癌患者参与了该研究。我们发现，两家医院的医生都是主要的信息来源；一家医院使用基于多媒体的信息传播工具系统地向每位患者传递信息，而另一家医院则以临时口头方式传递信息。那些通过多媒体工具接收信息的患者理解所讲内容，并且对下一步有更好的准备，而那些通过口头接收信息的患者记不住太多内容，感到困惑，并表示不满。
尽管医生是主要的信息来源，但患者在理解所讲内容方面存在困难。根据头颈癌患者的需求提供综合信息及视听资料，似乎能提高他们对自身癌症的理解，并为治疗做好准备。
