Department of Clinical, Neuro- and Developmental Psychology, Faculty of Behavioral and Movement Sciences, Amsterdam Public Health research institute, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Cancer Center Amsterdam (CCA), Amsterdam UMC, location VUmc, Amsterdam, The Netherlands.
Support Care Cancer. 2020 Jan;28(1):131-140. doi: 10.1007/s00520-019-04757-6. Epub 2019 Apr 16.
To investigate among patients treated with a total laryngectomy (TL) (1) Internet-use and Internet use to search for information on health and cancer (content); (2) which patients are most likely to use the Internet in general, for health-related and cancer-related purposes; (3) which other types of eHealth (community, communication, care) are used; and (4) preferences towards future use.
Patient members of the Dutch TL patient society were asked to complete a questionnaire on Internet use, health-related and cancer-related Internet use, types of eHealth, preferences towards future use, socio-demographics, clinical factors, and quality of life (QOL). Factors associated with Internet use and health-related and cancer-related Internet use were investigated using stepwise logistic regression analysis.
In total, 279 TL patients participated, of whom 68% used the Internet. Of these, 63% used the Internet to search for information on health and 49% on cancer. Younger and higher educated TL patients and those with better QOL used the Internet more often. Patients with worse QOL searched more often for health-related information. Younger patients and those with shorter time since TL searched more often for cancer-related information. The current use of eHealth for communication, community, and care purposes among Internet users was limited (range, 2 to 15%). Many were interested in using these types of eHealth in the future (range, 21 to 72%).
The majority used the Internet, especially to search for information on health and cancer, but only few for communication, community, or care purposes. Many were interested in future use.
调查接受全喉切除术（TL）治疗的患者：（1）互联网使用情况和搜索健康及癌症相关信息的内容；（2）哪些患者最有可能出于一般目的、健康相关目的和癌症相关目的使用互联网；（3）使用哪些其他类型的电子健康（社区、交流、护理）；（4）对未来使用的偏好。
荷兰 TL 患者协会的患者成员被要求填写一份关于互联网使用情况、健康和癌症相关互联网使用情况、电子健康类型、未来使用偏好、社会人口统计学、临床因素和生活质量（QOL）的问卷。使用逐步逻辑回归分析调查与互联网使用和健康及癌症相关互联网使用相关的因素。
共有 279 名 TL 患者参与，其中 68%的患者使用互联网。其中，63%的患者使用互联网搜索健康信息，49%的患者搜索癌症信息。年轻和受过高等教育的 TL 患者以及生活质量较好的患者更频繁地使用互联网。生活质量较差的患者更频繁地搜索健康相关信息。较年轻的患者和 TL 后时间较短的患者更频繁地搜索癌症相关信息。互联网用户目前对电子健康的交流、社区和护理用途的使用有限（范围 2 到 15%）。许多人对未来使用这些类型的电子健康感兴趣（范围 21 到 72%）。
大多数患者使用互联网，尤其是搜索健康和癌症相关信息，但只有少数人用于交流、社区或护理目的。许多人对未来的使用感兴趣。
