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关于亚太地区十个国家遗传咨询行业现状与未来发展方向的报告:亚洲遗传咨询师专业协会的成立

A Report on Ten Asia Pacific Countries on Current Status and Future Directions of the Genetic Counseling Profession: The Establishment of the Professional Society of Genetic Counselors in Asia.

作者信息

Laurino Mercy Y, Leppig Kathleen A, Abad Peter James, Cham Breana, Chu Yoyo Wing Yiu, Kejriwal Saahil, Lee Juliana M H, Sternen Darci L, Thompson Jennifer K, Burgess Matthew J, Chien Shu, Elackatt Niby, Lim Jiin Ying, Sura Thanyachai, Faradz Sultana, Padilla Carmencita, Paz Eva Cutiongco de-la, Nauphar Donny, Nguyen Khanh Ngoc, Zayts Olya, Vu Dung Chi, Thong Meow-Keong

机构信息

Department of Pediatrics, College of Medicine, University of the Philippines Manila, Manila, Philippines.

Cancer Prevention Program, Seattle Cancer Care Alliance, 825 Eastlake Ave East Suite 210, Seattle, WA, 98109, USA.

出版信息

J Genet Couns. 2018 Feb;27(1):21-32. doi: 10.1007/s10897-017-0115-6. Epub 2017 Jul 11.

Abstract

The Professional Society of Genetic Counselors in Asia (PSGCA) was recently established as a special interest group of the Asia Pacific Society of Human Genetics. Fostering partnerships across the globe, the PSGCA's vision is to be the lead organization that advances and mainstreams the genetic counseling profession in Asia and ensures individuals have access to genetic counseling services. Its mission is to promote quality genetic counseling services in the region by enhancing practice and curricular standards, research and continuing education. The PSGCA was formally launched during the Genetic Counseling Pre-Conference Workshop held at the 11th Asia-Pacific Conference on Human Genetics in Hanoi, Viet Nam, September 16, 2015. The pre-conference workshop provided an opportunity for medical geneticists and genetic counselors from across 10 Asia Pacific countries to learn about the varied genetic counseling practices and strategies for genetic counseling training. This paper provides an overview of the current status and challenges in these countries, and proposed course of unified actions for the future of the genetic counseling profession.

摘要

亚洲遗传咨询师专业协会(PSGCA)最近作为亚太人类遗传学会的一个特别兴趣小组成立。PSGCA的愿景是通过在全球范围内建立伙伴关系,成为推动亚洲遗传咨询专业发展并使其成为主流的领先组织,并确保个人能够获得遗传咨询服务。其使命是通过提高实践和课程标准、研究和继续教育,在该地区推广高质量的遗传咨询服务。PSGCA于2015年9月16日在越南河内举行的第11届亚太人类遗传学会议的遗传咨询会前研讨会上正式启动。会前研讨会为来自10个亚太国家的医学遗传学家和遗传咨询师提供了一个机会,以了解不同的遗传咨询实践和遗传咨询培训策略。本文概述了这些国家的现状和挑战,并为遗传咨询专业的未来提出了统一行动方案。

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