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患者对肝硬化的理解以及通过多媒体教育实现的改善。

Patient understanding of liver cirrhosis and improvement using multimedia education.

作者信息

Goldsworthy Matthew A, Fateen Waleed, Thygesen Helene, Aldersley Mark A, Rowe Ian A, Jones Rebecca L

机构信息

School of Medicine, University of Leeds, Leeds, UK.

NIHR Digestive Diseases Biomedical Research Unit, Nottingham University Hospitals NHS Trust and The University of Nottingham, Nottingham, UK.

出版信息

Frontline Gastroenterol. 2017 Jul;8(3):214-219. doi: 10.1136/flgastro-2016-100761. Epub 2017 Jan 19.

Abstract

OBJECTIVE

For patients to engage with the long-term management of liver cirrhosis, sufficient understanding of their condition is essential. The aim of this study was to assess baseline patient knowledge and to test whether a condition-specific multimedia screencast could improve this.

DESIGN

Service quality improvement study.

SETTING

A UK tertiary liver centre. Patients were recruited during 12 general hepatology outpatient clinics.

PATIENTS

Fifty-two patients with liver cirrhosis were included. Sixty-two per cent were male; their median age was 56 years and their median clinic attendance period was 3 years.

INTERVENTIONS

Participants completed a baseline questionnaire assessing their knowledge of the management and complications of cirrhosis. They then watched a tailored screencast discussing this condition, which had been developed by expert hepatologists in collaboration with patient representatives. Knowledge was reassessed using a new copy of the original questionnaire after an interval of at least one month.

MAIN OUTCOME MEASURES

Patient scores on knowledge questionnaires at baseline and follow-up.

RESULTS

Fifty-two patients achieved a median score of 25.0% before viewing the screencast. Thirty-five patients then completed a follow-up questionnaire after an interval period. The median questionnaire score in this group improved from 25.0% to 66.7%; an increase of 41.7% compared with baseline (p<0.001).

CONCLUSIONS

Despite regular review at a specialist clinic, participants had poor baseline knowledge of liver cirrhosis. Delivering information by screencast led to a significant improvement. We therefore present an effective way to empower patients with accurate, up-to-date and retainable information that can easily be translated to many other conditions.

摘要

目的

为使患者参与肝硬化的长期管理,充分了解自身病情至关重要。本研究的目的是评估患者的基线知识水平,并测试特定病情的多媒体屏幕录像是否能改善这一情况。

设计

服务质量改进研究。

地点

英国一家三级肝病中心。在12次普通肝病门诊期间招募患者。

患者

纳入52例肝硬化患者。62%为男性;他们的中位年龄为56岁,中位就诊时间为3年。

干预措施

参与者完成一份基线问卷,评估他们对肝硬化管理和并发症的了解。然后他们观看了一段由肝病专家与患者代表合作制作的、针对该病情的定制屏幕录像。在至少间隔一个月后,使用原始问卷的新副本重新评估知识水平。

主要观察指标

基线和随访时患者在知识问卷上的得分。

结果

52例患者在观看屏幕录像前的中位得分为25.0%。35例患者随后在间隔期后完成了一份随访问卷。该组问卷中位得分从25.0%提高到66.7%;与基线相比增加了41.7%(p<0.001)。

结论

尽管在专科诊所定期复诊,但参与者对肝硬化的基线知识水平较差。通过屏幕录像提供信息导致了显著改善。因此,我们提出了一种有效的方法,为患者提供准确、最新且易于记忆的信息,这些信息可轻松应用于许多其他疾病。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6984/5558286/db06ff36c267/flgastro-2016-100761f01.jpg

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