Goldsworthy Matthew A, Fateen Waleed, Thygesen Helene, Aldersley Mark A, Rowe Ian A, Jones Rebecca L
School of Medicine, University of Leeds, Leeds, UK.
NIHR Digestive Diseases Biomedical Research Unit, Nottingham University Hospitals NHS Trust and The University of Nottingham, Nottingham, UK.
Frontline Gastroenterol. 2017 Jul;8(3):214-219. doi: 10.1136/flgastro-2016-100761. Epub 2017 Jan 19.
For patients to engage with the long-term management of liver cirrhosis, sufficient understanding of their condition is essential. The aim of this study was to assess baseline patient knowledge and to test whether a condition-specific multimedia screencast could improve this.
Service quality improvement study.
A UK tertiary liver centre. Patients were recruited during 12 general hepatology outpatient clinics.
Fifty-two patients with liver cirrhosis were included. Sixty-two per cent were male; their median age was 56 years and their median clinic attendance period was 3 years.
Participants completed a baseline questionnaire assessing their knowledge of the management and complications of cirrhosis. They then watched a tailored screencast discussing this condition, which had been developed by expert hepatologists in collaboration with patient representatives. Knowledge was reassessed using a new copy of the original questionnaire after an interval of at least one month.
Patient scores on knowledge questionnaires at baseline and follow-up.
Fifty-two patients achieved a median score of 25.0% before viewing the screencast. Thirty-five patients then completed a follow-up questionnaire after an interval period. The median questionnaire score in this group improved from 25.0% to 66.7%; an increase of 41.7% compared with baseline (p<0.001).
Despite regular review at a specialist clinic, participants had poor baseline knowledge of liver cirrhosis. Delivering information by screencast led to a significant improvement. We therefore present an effective way to empower patients with accurate, up-to-date and retainable information that can easily be translated to many other conditions.
为使患者参与肝硬化的长期管理,充分了解自身病情至关重要。本研究的目的是评估患者的基线知识水平,并测试特定病情的多媒体屏幕录像是否能改善这一情况。
服务质量改进研究。
英国一家三级肝病中心。在12次普通肝病门诊期间招募患者。
纳入52例肝硬化患者。62%为男性;他们的中位年龄为56岁,中位就诊时间为3年。
参与者完成一份基线问卷,评估他们对肝硬化管理和并发症的了解。然后他们观看了一段由肝病专家与患者代表合作制作的、针对该病情的定制屏幕录像。在至少间隔一个月后,使用原始问卷的新副本重新评估知识水平。
基线和随访时患者在知识问卷上的得分。
52例患者在观看屏幕录像前的中位得分为25.0%。35例患者随后在间隔期后完成了一份随访问卷。该组问卷中位得分从25.0%提高到66.7%;与基线相比增加了41.7%(p<0.001)。
尽管在专科诊所定期复诊,但参与者对肝硬化的基线知识水平较差。通过屏幕录像提供信息导致了显著改善。因此,我们提出了一种有效的方法,为患者提供准确、最新且易于记忆的信息,这些信息可轻松应用于许多其他疾病。