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应对痴呆症日常挑战(deal-id 研究):对“伴侣在视线中”体验抽样方法干预措施用于痴呆症患者配偶照顾者的过程评估。

Dealing with daily challenges in dementia (deal-id study): process evaluation of the experience sampling method intervention 'Partner in Sight' for spousal caregivers of people with dementia.

机构信息

a Department of Psychiatry and Neuropsychology and Alzheimer Center Limburg, School for Mental Health and Neurosciences , Maastricht University , Maastricht , The Netherlands.

b Department of Neurosciences, Center for Contextual Psychiatry , KU Leuven , Leuven , Belgium.

出版信息

Aging Ment Health. 2018 Sep;22(9):1199-1206. doi: 10.1080/13607863.2017.1348466. Epub 2017 Jul 17.

DOI:10.1080/13607863.2017.1348466
PMID:28714738
Abstract

OBJECTIVES

This study describes the process evaluation of the experience sampling method (ESM) intervention 'Partner in Sight' for spousal caregivers of people with dementia. The aim was to determine internal and external validity of the intervention and provide information for future implementation in clinical practice.

METHOD

Qualitative and quantitative data on sampling quality (recruitment and randomization, reach) and intervention quality (relevance and feasibility, adherence to protocol) were evaluated using descriptive statistics and conventional content analysis.

RESULTS

The participation rate included 31.4%. Due to recruitment difficulties and time constraints the original goal to include 90 caregivers was not met. The intervention was largely performed according to protocol and well received by the participants. Overall, the ESM-derived feedback was considered supportive and increased participants' awareness of their feelings and behavior. A large variance was found in the extent to which caregivers applied the feedback into their daily lives. The importance of the personal coach to provide face-to-face feedback and stimulate caregivers to implement new insights into their daily lives was emphasized. Suggestions for improvement were to reduce the time intensity of the program, to better tailor the program content to one's personal situation, and to improve the ESM device.

CONCLUSION

Although recruitment barriers were encountered, results indicate that future implementation of the ESM intervention 'Partner in Sight' is likely to be feasible in regular health care. If the intervention turns out to be (cost-) effective, a fine-tuned version of the program could be a valuable addition to the current health care system.

摘要

目的

本研究描述了配偶照顾者体验抽样法(ESM)干预“伴侣在视线中”的过程评估。目的是确定干预措施的内部和外部有效性,并为未来在临床实践中的实施提供信息。

方法

使用描述性统计和常规内容分析评估定性和定量数据,包括抽样质量(招募和随机化、可达性)和干预质量(相关性和可行性、遵守方案)。

结果

参与率为 31.4%。由于招募困难和时间限制,未能达到纳入 90 名照顾者的最初目标。该干预措施在很大程度上按照方案进行,并且受到参与者的好评。总体而言,ESM 得出的反馈被认为具有支持性,并提高了参与者对自己感受和行为的认识。在照顾者将反馈应用于日常生活的程度方面存在很大差异。个人教练提供面对面反馈并激发照顾者将新见解应用于日常生活的重要性得到了强调。改进的建议包括减少方案的时间强度,更好地根据个人情况调整方案内容,并改进 ESM 设备。

结论

尽管遇到了招募障碍,但结果表明,未来在常规医疗保健中实施 ESM 干预“伴侣在视线中”可能是可行的。如果干预措施具有(成本)效益,那么对该程序进行微调可能是当前医疗保健系统的一个有价值的补充。

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