Vachon Brigitte, Huynh Ai-Thuy, Breton Mylaine, Quesnel Louise, Camirand Michel, Leblanc Jeannette, Tardif Sylvie
Université de Montréal, Faculté de médecine , Montreal, Canada.
Centre de recherche de l'Institut universitaire en santé mentale de Montréal, Montreal, Canada.
Int J Health Care Qual Assur. 2017 Jul 10;30(6):554-567. doi: 10.1108/IJHCQA-07-2016-0106.
Purpose The purpose of this paper is to document health care needs expressed by people living with diabetes, describe the solutions they envisaged for improving the quality of primary care (PC) services and empower them to make better use of PC services. Design/methodology/approach A participatory research approach was used. Six workshops were organised to provide diabetes patients with knowledge on available services and to engage them in sharing their experience. Group discussions were recorded. Data were analysed using the thematic analysis method. Findings In total, 79 persons living with diabetes for a mean of 13 years participated. Needs expressed were grouped under seven themes: assurance of satisfactory follow-up by a family physician, continuous access to services adapted to evolving needs, motivation to adopt and maintain healthy behaviours, maintenance of knowledge about diabetes, psychological support, financial constraints, and collaboration with secondary-level services. Patients proposed solutions for improving services that were grouped under five themes: facilitating access to services, disseminating information about available services, centralising diabetes information on the internet, offering personalised services and improving interprofessional collaboration. Practical implications Needs expressed by diabetic patients concern different aspects of care such as accessibility, organisation, coordination, and better dissemination and visibility of services. The solutions proposed by patients focussed on better access to information and interprofessional services. Originality/value The workshop format used in this study offers an original and interesting approach and tool for actively engaging patients in quality improvement of services.
目的 本文旨在记录糖尿病患者表达的医疗保健需求，描述他们设想的改善初级保健（PC）服务质量的解决方案，并使他们能够更好地利用PC服务。 设计/方法/途径 采用了参与式研究方法。组织了六次研讨会，向糖尿病患者提供有关现有服务的知识，并让他们分享自己的经验。小组讨论进行了记录。使用主题分析法对数据进行了分析。 结果 共有79名平均患糖尿病13年的患者参与。表达的需求分为七个主题：家庭医生确保令人满意的随访、持续获得适应不断变化需求的服务、采取和维持健康行为的动力、糖尿病知识的保持、心理支持、经济限制以及与二级服务的协作。患者提出了改善服务的解决方案，分为五个主题：便利服务获取、传播有关现有服务的信息、在互联网上集中糖尿病信息、提供个性化服务以及改善跨专业协作。 实际意义 糖尿病患者表达的需求涉及护理的不同方面，如可及性、组织、协调以及服务的更好传播和可见性。患者提出的解决方案集中在更好地获取信息和跨专业服务上。 原创性/价值 本研究中使用的研讨会形式为让患者积极参与服务质量改进提供了一种新颖且有趣的方法和工具。
