Children's National Health System, Department of Cardiology, Washington DC, USA.
Children's National Health System, Department of Cardiology, Washington DC, USA.
Patient Educ Couns. 2018 Jan;101(1):119-123. doi: 10.1016/j.pec.2017.07.006. Epub 2017 Jul 11.
To assess the impact of a peer-support group on knowledge, quality of life, and social support for children with rheumatic heart disease (RHD).
Children diagnosed with RHD and receiving 4-weekly injectable penicillin were invited to participate in a monthly support group for 6 months. Pre- and post-intervention assessments included a baseline RHD knowledge assessment, a measure of health related quality of life (HRQOL) (PedsQL4.0), and a measure of social support (Hawthorne Friendship Scale). Groups incorporated elements of cooperative play and team building, RHD education, and emotional support.
42 participants attended ≥3 groups and were included in the analyses. Attending support groups resulted in increased total HRQOL scores (60.3v 70.2, p<0.001), as well as the following HRQOL sub-scores (physical functioning 55.3v 68.6 (p<0.001), social functioning 64.2v 75.8 (p<0.001) and school functioning 59.2v 69.1 (p=0.001)). Significant increases in Friendship Scale scores (15.4v 19.7, p<0.001) and RHD Knowledge scores were observed (3.6v 6.4, p<0.001).
Peer-support groups may be effective at normalizing decreased HRQOL scores and increasing RHD disease knowledge and social support.
Peer-support groups implemented in conjunction with RHD screening can minimize the negative psychosocial effects associated with early RHD detection.
评估同伴支持小组对风湿性心脏病（RHD）患儿知识、生活质量和社会支持的影响。
邀请被诊断为 RHD 并接受每周 4 次注射青霉素的儿童参加为期 6 个月的每月支持小组。在干预前后评估包括 RHD 知识基线评估、健康相关生活质量（PedsQL4.0）测量和社会支持（霍桑友谊量表）测量。小组融入了合作游戏和团队建设、RHD 教育和情感支持的元素。
42 名参与者参加了≥3 次小组会议并被纳入分析。参加支持小组导致总 HRQOL 评分增加（60.3v70.2，p<0.001），以及以下 HRQOL 子评分增加（身体功能 55.3v68.6（p<0.001），社会功能 64.2v75.8（p<0.001）和学校功能 59.2v69.1（p=0.001））。友谊量表评分（15.4v19.7，p<0.001）和 RHD 知识评分显著增加（3.6v6.4，p<0.001）。
同伴支持小组可能有效改善降低的 HRQOL 评分，并增加 RHD 疾病知识和社会支持。
与 RHD 筛查一起实施的同伴支持小组可以最小化与早期 RHD 检测相关的负面心理社会影响。
