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“它改变了一切。而且并非全是坏事”:对儿童癌症经历的反思

"It Changed Everything. And Not All in a Bad Way": Reflections of Pediatric Cancer Experiences.

作者信息

Molinaro Monica L, Fletcher Paula C

机构信息

a Health and Rehabilitation Sciences, The University of Western Ontario , London , Ontario , Canada.

b Kinesiology and Physical Education , Wilfrid Laurier University , Waterloo , Ontario , Canada.

出版信息

Compr Child Adolesc Nurs. 2017 Sep;40(3):157-172. doi: 10.1080/24694193.2017.1307471. Epub 2017 Apr 7.

Abstract

Pediatric cancer, otherwise known as childhood cancer, is devastating to both children and their families. All individuals in a family are often physically, psychologically, and socially affected. Using the qualitative theoretical orientation of interpretive phenomenology, interviews were conducted with 10 pediatric cancer survivors and 9 of their support persons to gain a more holistic understanding of the pediatric cancer experiences of children and their families. A total of 4 themes emerged from the data, however only the past experiences of the survivors and their recollection of their pediatric journeys will be discussed. Survivors experienced a variety of negative effects during and after treatment, while their support persons explained the emotional upheaval they experienced while caring for their children. Further, all individuals recalled positive memories throughout their journeys. The results of this study provide health care professionals and school administrators with insight into how to manage the difficult transitions children with cancer face when returning to school after cancer diagnosis and/or treatment. As well, this study may allow others undergoing similar journeys to relate to the lived experiences of the participants in this work.

摘要

儿科癌症,也被称为儿童癌症,对儿童及其家庭来说都是毁灭性的。家庭中的所有成员往往在身体、心理和社会方面都会受到影响。采用解释现象学的质性理论取向,对10名儿科癌症幸存者及其9名支持人员进行了访谈,以更全面地了解儿童及其家庭的儿科癌症经历。数据共呈现出4个主题,但本文仅讨论幸存者过去的经历以及他们对儿科治疗历程的回忆。幸存者在治疗期间和治疗后经历了各种负面影响,而他们的支持人员则解释了在照顾孩子时所经历的情绪动荡。此外,所有人都回忆起了整个历程中的美好回忆。本研究结果为医疗保健专业人员和学校管理人员提供了见解,有助于他们了解癌症患儿在癌症诊断和/或治疗后重返学校时如何应对艰难的过渡阶段。同样,本研究也可能让其他经历类似历程的人能够与本研究参与者的生活经历产生共鸣。

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