Molinaro Monica L, Fletcher Paula C
Author Affiliations: PhD Student (MsMolinaro), Health and Rehabiliation Sciences Program, Western University, London, Ontario, Canada; Professor (Dr Fletcher), Department of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, Ontario, Canada.
Clin Nurse Spec. 2018 Sep/Oct;32(5):268-278. doi: 10.1097/NUR.0000000000000397.
The purpose of this study was to examine the lived experiences of the perceived long-term effects of pediatric cancer on adult survivors and whether these effects had bearing on their primary support persons.
This work was guided by van Manen's "new" interpretive phenomenology.
Ten survivors of pediatric cancer (aged 21-28 years) and 9 of their support persons (aged 23-73 years) were recruited. Background questionnaires were administered, and interviews were conducted. Field notes were collected, and member checks were administered for data credibility.
A total of 4 themes emerged from this work; however, only the theme discussing posttraumatic growth will be discussed. Posttraumatic growth manifested in different ways, such as motivation for career or schooling choices, doing charity work, working with cancer organizations, or mentoring children undergoing pediatric cancer treatment.
This work may provide comfort to other individuals with pediatric cancer knowing that they are not alone in their journeys. Healthcare providers should attempt to make pediatric cancer experiences as "normal" as possible for patients and their families and observe for signs of stress in their patients. As well, it is important for the pediatric cancer literature to illustrate that young adult survivors of pediatric cancer find positive outcomes in their experiences.
本研究旨在探究儿童癌症对成年幸存者的长期影响的实际经历,以及这些影响是否对他们的主要支持人员产生影响。
本研究以范曼恩的“新”解释现象学为指导。
招募了10名儿童癌症幸存者(年龄在21 - 28岁之间)及其9名支持人员(年龄在23 - 73岁之间)。发放背景调查问卷并进行访谈。收集实地记录,并进行成员核对以确保数据可信度。
本研究共得出4个主题;然而,此处仅讨论关于创伤后成长的主题。创伤后成长以不同方式表现出来,例如在职业或学业选择上的动力、从事慈善工作、与癌症组织合作或指导接受儿童癌症治疗的儿童。
这项研究可能会让其他儿童癌症患者感到欣慰,因为他们知道在自己的抗癌历程中并不孤单。医疗服务提供者应努力让患者及其家人的儿童癌症经历尽可能“正常”,并留意患者的压力迹象。此外,儿童癌症相关文献表明儿童癌症成年幸存者能从自身经历中获得积极结果也很重要。