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晚期痴呆症姑息治疗的障碍:一项范围综述

Barriers to palliative care for advanced dementia: a scoping review.

作者信息

Erel Meira, Marcus Esther-Lee, Dekeyser-Ganz Freda

机构信息

Henrietta Szold Hadassah-Hebrew University School of Nursing, Jerusalem, Israel.

Division of Geriatrics, Herzog Medical Center, Jerusalem, Israel; Hadassah-Hebrew University School of Medicine, Jerusalem, Israel.

出版信息

Ann Palliat Med. 2017 Oct;6(4):365-379. doi: 10.21037/apm.2017.06.13.

DOI:10.21037/apm.2017.06.13
PMID:28754048
Abstract

People with dementia often fail to receive palliative care, despite increased recognition of their need and eligibility for such care. The aims of this study were to assess the barriers associated with a lack of implementation of palliative care for people with dementia and to explore whether there is a gap in knowledge necessitating further study. We reviewed the English literature published from 2000 to 2016, related to barriers to palliative care for people with dementia. Twenty-two articles met inclusion criteria for the review. Most originated in Europe or North America and were qualitative in nature. Four key themes were identified: administrative/policy issues, education, communication, and staff personal characteristics. Barriers to the delivery of palliative care for people with dementia have been studied for more than a decade, yet at present, there is a lack of consensus in practice. More research is needed related to barriers associated with personal characteristics. Such investigations have the potential to improve and better understand the complex nature of palliative care in this population.

摘要

尽管人们越来越认识到痴呆症患者对姑息治疗的需求及资格,但痴呆症患者往往无法获得姑息治疗。本研究的目的是评估与痴呆症患者缺乏姑息治疗实施相关的障碍,并探讨是否存在知识差距,需要进一步研究。我们回顾了2000年至2016年发表的与痴呆症患者姑息治疗障碍相关的英文文献。22篇文章符合该综述的纳入标准。大多数文章来自欧洲或北美,本质上是定性研究。确定了四个关键主题:行政/政策问题、教育、沟通和工作人员个人特征。关于痴呆症患者姑息治疗的障碍已经研究了十多年,但目前在实践中缺乏共识。需要更多关于与个人特征相关障碍的研究。此类调查有可能改善并更好地理解该人群姑息治疗的复杂性质。

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Improving Community-Based Palliative Care Explanations: Insights From Persons Declining Services.改进基于社区的姑息治疗解释:拒绝服务者的见解。
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Implementing a transmural model of early palliative care in advanced dementia: the use of a hybrid effectiveness-implementation study design.
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BMC Geriatr. 2025 May 2;25(1):303. doi: 10.1186/s12877-025-05955-0.
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PLoS One. 2024 Aug 29;19(8):e0309530. doi: 10.1371/journal.pone.0309530. eCollection 2024.
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