Department of Rehabilitation Sciences, Faculty of Health and Social Sciences, The Hong Kong Polytechnic University, Hung Hom, Hong Kong.
Res Dev Disabil. 2017 Sep;68:131-139. doi: 10.1016/j.ridd.2017.07.014. Epub 2017 Jul 29.
Children with specific learning disabilities (SpLD) are likely to develop self-stigma and have a poor quality of life (QoL) because of their poor academic performance. Although both self-stigma and poor QoL issues are likely to be found in low academic achievers without SpLD, children with SpLD have worse situation because their diagnosis of SpLD suggests that their learning struggles are biological and permanent. Specifically, students' perception of own capabilities may be affected more by the diagnosis of SpLD than their own actual performance.
We examined the self-stigma and QoL of children with SpLD in Hong Kong, a region with an academics-focused culture.
Children with SpLD (n=49,M±SD=9.55±1.21; SpLD group) and typically developing children (n=32,M±SD=9.81±1.40; TD group) completed a Kid-KINDL to measure QoL and a Modified Self-Stigma Scale to measure self-stigma. All parents completed a parallel Kid-KINDL to measure QoL of their children.
Compared with the TD group, the SpLD group had a higher level of self-stigma (p=0.027) and lower QoL (child-reported Kid-KINDL: p=0.001; parent-reported Kid-KINDL: p<0.001).
In the academics-focused environment in Hong Kong, SpLD was associated with impaired QoL and higher self-stigma. Treatments targeting the learning process of children with SpLD may be designed to overcome self-stigma and to improve QoL. In addition, the program may involve parents of the children with SpLD or other people (e.g., the peer of the children with SpLD) for improving their understanding and perceptions of SpLD.
由于学业表现不佳，患有特定学习障碍（SpLD）的儿童可能会产生自我污名化，并导致生活质量（QoL）较差。尽管在没有 SpLD 的低学业成就者中也可能存在自我污名化和生活质量较差的问题，但 SpLD 患儿的情况更糟，因为他们的 SpLD 诊断表明他们的学习困难是生物学和永久性的。具体来说，学生对自己能力的感知可能会受到 SpLD 诊断的影响比他们自己的实际表现更大。
我们研究了香港地区 SpLD 儿童的自我污名化和生活质量，该地区文化以学术为导向。
SpLD 儿童（n=49，M±SD=9.55±1.21；SpLD 组）和典型发育儿童（n=32，M±SD=9.81±1.40；TD 组）完成了 Kid-KINDL 以衡量生活质量，以及改良的自我污名量表来衡量自我污名化。所有父母都完成了一份平行的 Kid-KINDL 来衡量他们孩子的生活质量。
与 TD 组相比，SpLD 组的自我污名化程度更高（p=0.027），生活质量更低（儿童报告的 Kid-KINDL：p=0.001；父母报告的 Kid-KINDL：p<0.001）。
在香港以学术为导向的环境中，SpLD 与生活质量受损和自我污名化程度较高有关。针对 SpLD 儿童学习过程的治疗方法可能旨在克服自我污名化并提高生活质量。此外，该计划可能涉及 SpLD 儿童的父母或其他人员（例如 SpLD 儿童的同龄人），以提高他们对 SpLD 的理解和认知。
