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J Pediatr (Rio J). 2021 Sep-Oct;97(5):478-489. doi: 10.1016/j.jped.2020.10.013. Epub 2020 Dec 17.
2
How do doctors perceive and use patient quality of life? Findings from focus group interviews with hospital doctors and general practitioners.医生如何感知和使用患者的生活质量?医院医生和全科医生焦点小组访谈的结果。
Qual Life Res. 2020 Jul;29(7):1895-1901. doi: 10.1007/s11136-020-02451-3. Epub 2020 Mar 17.
3
Health-related quality of life in Chinese boys with Duchenne muscular dystrophy and their families.中国杜氏肌营养不良症男孩及其家庭的健康相关生活质量
J Child Health Care. 2019 Sep;23(3):495-506. doi: 10.1177/1367493519857423. Epub 2019 Jun 20.
4
Type of clinical outcomes used by healthcare professionals to evaluate health-related quality of life domains to inform clinical decision making for chronic pain management.用于评估与健康相关的生活质量领域的医疗保健专业人员所使用的临床结果类型,以便为慢性疼痛管理的临床决策提供信息。
Qual Life Res. 2019 Oct;28(10):2761-2771. doi: 10.1007/s11136-019-02215-8. Epub 2019 May 28.
5
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Aust Occup Ther J. 2019 Aug;66(4):417-427. doi: 10.1111/1440-1630.12570. Epub 2019 Feb 12.
6
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BJS Open. 2018 May 7;2(5):336-344. doi: 10.1002/bjs5.69. eCollection 2018 Sep.
7
Investigating quality of life and self-stigma in Hong Kong children with specific learning disabilities.调查香港特定学习障碍儿童的生活质量和自我污名化。
Res Dev Disabil. 2017 Sep;68:131-139. doi: 10.1016/j.ridd.2017.07.014. Epub 2017 Jul 29.
8
Patient, family, nurse perspectives on Chinese elders' quality of life.患者、家属和护士对中国老年人生活质量的看法。
Int Nurs Rev. 2017 Sep;64(3):388-395. doi: 10.1111/inr.12333. Epub 2016 Nov 11.
9
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Pharmacoeconomics. 2016 Jul;34(7):645-9. doi: 10.1007/s40273-016-0389-9.
10
Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities.具有智力和发育障碍的个体的儿科生活质量量表的信度和效度。
Am J Intellect Dev Disabil. 2015 Jul;120(4):289-301. doi: 10.1352/1944-7558-120.4.289.

香港儿童健康和生活质量测量的跨文化验证。

Cross-Cultural Validation of Health and Quality of Life Measures for Children in Hong Kong.

机构信息

Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Hong Kong.

Yew Chung College of Early Childhood Education, Aberdeen, Hong Kong.

出版信息

Occup Ther Int. 2022 Sep 27;2022:5672679. doi: 10.1155/2022/5672679. eCollection 2022.

DOI:10.1155/2022/5672679
PMID:36249579
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9532141/
Abstract

OBJECTIVE

The Pediatric Quality of Life Inventory (PedsQL™) 4.0 is a health-related quality of life (HRQOL) measure designed for clinical practice and research, health policy evaluation, and general population surveys. There is a dearth of instruments measuring quality of life in children which are available in Chinese and validated for Chinese populations. Therefore, this study attempted to establish the Hong Kong populations' norms for the Chinese version of PedsQL™ and examined the psychometric properties of the measure for this population.

METHODS

Sixty-nine children (aged 7 to 12 years) and their parents completed the child self-report and the parent proxy report, respectively, of the PedsQL™ 4.0 Generic Module. To evaluate construct validity, a group comparison of children with special educational needs (SEN) ( = 21) and those with typical development (TD) ( = 48) was conducted. Differences based on age group and gender and parent-child agreement on the perception of the child's HRQOL were also examined.

RESULTS

Children with SEN had a lower quality of life perception than those with TD in the physical, social, and schooling domains. No significant differences in emotional health were found between the two groups. The differences between the children with SEN and with TD varied based on age group and gender. The differences between the parents' and children's perceptions of the children's HRQOL were insignificant in this sample.

CONCLUSION

Norms for the Chinese version of the PedsQL™ 4.0 Generic Module for the Hong Kong population were established in the study, and both the child self-report and parent proxy report were found to be reliable and valid for this population.

摘要

目的

儿科生存质量量表(PedsQL™)4.0 是一种健康相关生存质量(HRQOL)的衡量标准,旨在用于临床实践和研究、卫生政策评估以及一般人群调查。目前缺乏可用于中国人群并经过验证的中文测量儿童生存质量的工具。因此,本研究试图为香港人群建立中文版本的 PedsQL™ 常模,并检验该工具在该人群中的心理测量学特性。

方法

69 名 7 至 12 岁的儿童及其家长分别完成了 PedsQL™ 4.0 通用模块的儿童自评和家长代评。为了评估结构效度,对有特殊教育需求(SEN)的儿童(n=21)和有典型发育(TD)的儿童(n=48)进行了组间比较。还检查了基于年龄组和性别以及父母和子女对儿童 HRQOL 感知的一致性的差异。

结果

SEN 儿童在生理、社会和学校领域的生存质量感知低于 TD 儿童。两组在情绪健康方面没有显著差异。SEN 儿童和 TD 儿童之间的差异因年龄组和性别而异。在本样本中,父母和子女对子女 HRQOL 的感知差异不显著。

结论

本研究为香港人群建立了中文版本的 PedsQL™ 4.0 通用模块的常模,并且发现儿童自评和家长代评在该人群中均具有可靠性和有效性。