Hepgul Nilay, Gao Wei, Evans Catherine J, Jackson Diana, van Vliet Liesbeth M, Byrne Anthony, Crosby Vincent, Groves Karen E, Lindsay Fiona, Higginson Irene J
Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, London, UK.
Department of Palliative Medicine, Sussex Community NHS Foundation Trust, Brighton, UK.
BMJ Support Palliat Care. 2018 Mar;8(1):41-44. doi: 10.1136/bmjspcare-2017-001354. Epub 2017 Aug 3.
Evaluations of new services for palliative care in non-cancer conditions are few. OPTCARE Neuro is a multicentre trial evaluating the effectiveness of short-term integrated palliative care (SIPC) for progressive long-term neurological conditions. Here, we present survey results describing the current levels of collaboration between neurology and palliative care services and exploring the views of professionals towards the new SIPC service.
Neurology and palliative care teams from six UK trial sites (London, Nottingham, Liverpool, Cardiff, Brighton and Chertsey) were approached via email to complete an online survey. The survey was launched in July 2015 and consisted of multiple choice or open comment questions with responses collected using online forms.
33 neurology and 26 palliative care professionals responded. Collaborations between the two specialties were reported as being 'good/excellent' by 36% of neurology and by 58% of palliative care professionals. However, nearly half (45%) of neurology compared with only 12% of palliative care professionals rated current levels as being 'poor/none'. Both professional groups felt that the new SIPC service would influence future collaborations for the better. However, they identified a number of barriers for the new SIPC service such as resources and clinician awareness.
Our results demonstrate the opportunity to increase collaboration between neurology and palliative care services for people with progressive neurological conditions, and the acceptability of SIPC as a model to support this.
ISRCTN18337380; Pre-results.
针对非癌症疾病的姑息治疗新服务的评估较少。OPTCARE Neuro是一项多中心试验，旨在评估短期综合姑息治疗（SIPC）对进行性长期神经系统疾病的有效性。在此，我们展示调查结果，描述神经科与姑息治疗服务之间当前的合作水平，并探讨专业人员对新SIPC服务的看法。
通过电子邮件联系来自英国六个试验地点（伦敦、诺丁汉、利物浦、加的夫、布莱顿和彻特西）的神经科和姑息治疗团队，以完成在线调查。该调查于2015年7月启动，由多项选择题或开放式评论问题组成，使用在线表格收集回复。
33名神经科专业人员和26名姑息治疗专业人员做出了回应。36%的神经科专业人员和58%的姑息治疗专业人员报告称两个专业之间的合作“良好/优秀”。然而，近一半（45%）的神经科专业人员认为当前合作水平“差/无”，而姑息治疗专业人员中这一比例仅为12%。两个专业群体都认为新的SIPC服务将对未来合作产生积极影响。然而，他们指出了新SIPC服务的一些障碍，如资源和临床医生意识。
我们的结果表明，对于患有进行性神经系统疾病的患者，有机会加强神经科与姑息治疗服务之间的合作，并且SIPC作为支持这种合作的模式具有可接受性。
ISRCTN18337380；预结果。
