Lyons-Warren Ariel M
1 Department of Pediatrics, Section on Neurology, Baylor College of Medicine, Houston, TX, USA.
Am J Hosp Palliat Care. 2019 Feb;36(2):154-157. doi: 10.1177/1049909118786956. Epub 2018 Jul 11.
It has long been recognized that patients with neurological conditions, and particularly pediatric neurology patients, are well suited for palliative care because they frequently have a high symptom burden and variable prognoses. In 1996, the American Academy of neurology formally recognized a need for neurologists to "understand and apply the principles of palliative medicine." Subsequently, some reviews have proposed a simultaneous care model in which palliative care is integrated for all neurology patients from the time of diagnosis. This article will review the current status of palliative care in pediatric neurology and discuss barriers to its integration.
长期以来,人们一直认识到患有神经系统疾病的患者,尤其是儿科神经科患者,非常适合接受姑息治疗,因为他们经常承受着较高的症状负担且预后各不相同。1996年,美国神经病学学会正式认识到神经科医生“理解并应用姑息医学原则”的必要性。随后,一些综述提出了一种同步护理模式,即从诊断之时起就为所有神经科患者提供综合姑息治疗。本文将综述儿科神经科姑息治疗的现状,并讨论其整合过程中的障碍。