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成长的烦恼:了解患有慢性疼痛的青少年成人的需求

Growing pains: understanding the needs of emerging adults with chronic pain.

作者信息

Twiddy Hannah, Hanna Julie, Haynes Louise

机构信息

Pain Management Programme, The Walton Centre NHS Foundation Trust, Liverpool, UK.

University of Liverpool, Liverpool, UK.

出版信息

Br J Pain. 2017 Aug;11(3):108-118. doi: 10.1177/2049463717709641. Epub 2017 May 15.

Abstract

BACKGROUND

Emerging adulthood (18-30 years), in the Western world, is often a time of identity development and exploration, focusing on areas of work, relationships and education. Individuals with chronic illnesses, such as chronic pain, may be more vulnerable to facing challenges during this time. This study aims to investigate the needs of young adults (YAs) attending a tertiary level National Health Service (NHS) Pain Management Programme (PMP) Service in the United Kingdom; exploring how these needs may translate on to clinical assessment and the delivery of rehabilitation interventions.

METHOD

This is a descriptive qualitative study influenced by phenomenological approaches. YA with a diagnosis of chronic pain were recruited and assigned to one of four focus groups facilitated by a clinical psychologist and occupational therapist. A semi-structured interview guide was used to help facilitate the group discussion.

RESULTS

Qualitative analysis identified four key themes in understanding the needs of YAs with chronic pain: (1) thwarted opportunities, (2) peer separation, (3) perceived illness validity in the context of age and (4) dependency/parental enmeshment.

CONCLUSIONS

The emerging adulthood literature provides a valuable framework for examining a normal developmental trajectory and highlights the relevance of age-related processes in YAs with chronic pain. The of opportunity and the role of in this developmental phase both appear relevant. It is significant that emotional stability is not yet established in emerging adulthood and links to unhelpful management strategies that may be differentiated from older populations are identified.

摘要

背景

在西方世界,青年期(18 - 30岁)通常是身份认同发展和探索的时期,重点在于工作、人际关系和教育领域。患有慢性疾病(如慢性疼痛)的个体在这个时期可能更容易面临挑战。本研究旨在调查英国参加国民医疗服务体系(NHS)三级疼痛管理计划(PMP)服务的青年成年人(YAs)的需求;探讨这些需求如何转化为临床评估和康复干预的实施。

方法

这是一项受现象学方法影响的描述性定性研究。招募被诊断患有慢性疼痛的青年成年人,并将其分配到由临床心理学家和职业治疗师主持的四个焦点小组之一。使用半结构化访谈指南来促进小组讨论。

结果

定性分析确定了理解患有慢性疼痛的青年成年人需求的四个关键主题:(1)机会受阻,(2)同伴分离,(3)在年龄背景下感知到的疾病有效性,以及(4)依赖/与父母的纠葛。

结论

青年期的相关文献为审视正常的发展轨迹提供了一个有价值的框架,并突出了与年龄相关的过程在患有慢性疼痛的青年成年人中的相关性。机会受阻以及在这个发展阶段父母的角色似乎都很相关。重要的是,在青年期情绪稳定性尚未确立,并且识别出了可能与老年人群体不同的无益管理策略之间的联系。

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本文引用的文献

1
Future goals of adolescents and young adults with chronic musculoskeletal pain.
Eur J Pain. 2016 Apr;20(4):564-72. doi: 10.1002/ejp.762. Epub 2015 Aug 18.
3
Lives on hold: a qualitative synthesis exploring the experience of chronic low-back pain.
Clin J Pain. 2013 Oct;29(10):907-16. doi: 10.1097/AJP.0b013e31827a6dd8.
5
Psychological therapies for the management of chronic pain (excluding headache) in adults.
Cochrane Database Syst Rev. 2012 Nov 14;11(11):CD007407. doi: 10.1002/14651858.CD007407.pub3.
6
Self-perceived burden in chronic pain: relevance, prevalence, and predictors.
Pain. 2012 Aug;153(8):1735-1741. doi: 10.1016/j.pain.2012.05.009. Epub 2012 Jun 14.
7
Cognitive dimensions of anger in chronic pain.
Pain. 2012 Mar;153(3):515-517. doi: 10.1016/j.pain.2011.10.023. Epub 2011 Dec 2.
8
Growing up with a chronic illness: social success, educational/vocational distress.
J Adolesc Health. 2011 Aug;49(2):206-12. doi: 10.1016/j.jadohealth.2010.12.001. Epub 2011 Feb 4.
10
Research paradigms in medical education research.
Med Educ. 2010 Apr;44(4):358-66. doi: 10.1111/j.1365-2923.2009.03611.x.

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